Author Archives: Jill Price

Tips for Photography Enthusiasts with Disabilities

Recently, I joined a photography group for moms, and with them, I’ve been learning new techniques to feed my passion. However, there are times that I find these techniques difficult due to Charcot-Marie-Tooth (CMT). My hands sometimes shake which makes the photo blurry, or I hit the shutter too soon…

It’s Time to Be Gentler with Myself

A few months ago, I was at a photography club meeting and the leader reminded us to be gentle with ourselves. The comment really hit home. I know the benefits of self-care and what I should do to take care of myself. But do I always follow through? No,…

Managing My Anxiety During the COVID-19 Pandemic

Are you feeling anxious about COVID-19 and its effects around the world? You are not alone. In these times of uncertainty, it’s natural to feel anxious. I, too, am a bit overwhelmed by the situation. We are in a unique time, and no one knows the best way to deal…

Having a Child Was the Right Decision for Me

“Would you have had children if you knew they would have Charcot-Marie-Tooth?” I have heard this question before from friends and acquaintances when I told them about Charcot-Marie-Tooth disease (CMT).  When I am asked, my answer is always the same and without hesitation: yes. I would have had my son…

Exercise Is Good for Us, So Let’s Get Moving!

“Movement is medicine.” I have heard this saying a few times, and I wondered what it was about. Years ago, doctors typically told Charcot-Marie-Tooth (CMT) patients that exercise is not the best option. The Hereditary Neuropathy Foundation is working to change that. The foundation suggests that people with CMT…

Daddy Taught Me These Lessons About Life and CMT

“Why does your dad walk like that?” a friend once asked me. At the time, I hadn’t even noticed. He had always walked that way. I knew we had Charcot-Marie-Tooth disease (CMT), but it never occurred to me that he walked funny — or that I did, too. Daddy has…

Oh, No! I Have to Go Again!

Do you ever have to rush to the bathroom? Are there times when you feel you cannot control the urge? Or perhaps you urinate frequently — more than eight times in a 24-hour period — or awaken more than two times a night to urinate? This is not uncommon as…