Columns

January 14, 2020January 13, 2020

Mister Rogers Taught Me These Lessons About Managing CMT

At the beginning of every episode of “Mister Rogers’ Neighborhood,” Fred Rogers walked through a door and greeted his audience by singing the show’s theme, “Won’t You Be My ... Read more

January 13, 2020January 10, 2020

Celebrities with CMT Help to Raise Awareness

CMT and Me - a Column by Jill Price, Columns

Growing up with Charcot-Marie-Tooth disease, I had no idea that other people — including celebrities — might have it. I rarely heard of a celebrity with a disability when ... Read more

January 7, 2020January 6, 2020

‘Mentionable and Manageable’: What Mr. Rogers Taught Me About CMT Advocacy

Columns, On My Own Two by Young Lee

For many years, my childhood bedroom featured a photo of Mr. McFeely, the friendly mailman from the beloved children’s television series “Mister Rogers’ Neighborhood.” It was as a souvenir ... Read more

January 6, 2020January 2, 2020

What I Learned Over the Last Decade

CMT and Me - a Column by Jill Price, Columns

It’s hard to believe that we are in a new decade. I have grown and changed so much in the last 10 years. Looking back, I am amazed at ... Read more

December 16, 2019December 12, 2019

It’s OK to Have a Bad Day Now and Then

CMT and Me - a Column by Jill Price, Columns

Meeting a new neurologist is always an adventure. My son and I recently had our annual appointments at the Johns Hopkins Charcot-Marie-Tooth (CMT) Center in Baltimore. Our appointments were ... Read more

December 10, 2019December 6, 2019

Experimenting with Cubing As a Way to Maintain My Abilities

Columns, On My Own Two by Young Lee

For the past few weeks, I’ve been studying sequences of hand movements and letter combinations. For example, U, R, U’, L’, U, R’, U’, L was one combination I ... Read more

December 9, 2019December 5, 2019

A Good Boot Is Hard to Find

CMT and Me - a Column by Jill Price, Columns

Winter brings cold, wet weather. That means it’s time to begin the search for winter boots. I dread shoe shopping, and I probably dread boot shopping even more. Because ... Read more

December 3, 2019November 28, 2019

Book Is a Tribute to the Lady in the Pink Dress

Columns, On My Own Two by Young Lee

The North Carolina Museum of Art has a few paintings by Andrew Wyeth. One of them is “Weather Side,” which depicts a side of the house where Christina Olson ... Read more

December 2, 2019November 26, 2019

Weighing in on Weighted Blankets

CMT and Me - a Column by Jill Price, Columns

Sleep issues are not uncommon for Charcot-Marie-Tooth (CMT) patients: obstructive sleep apnea and restless leg syndrome have been associated with CMT1. Fatigue is my most frustrating symptom, so I ... Read more

November 26, 2019November 22, 2019

Thinking about ‘Christina’s World’ and CMT

Columns, On My Own Two by Young Lee

Until recently, I never took anything written by art critics personally. But a few weeks ago I started reading criticism of Andrew Wyeth’s painting “Christina’s World.” With each critique, ... Read more

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