Columns

June 17, 2019June 13, 2019

A Few Hacks I’ve Found for Dealing with Clothing Issues

CMT and Me - a Column by Jill Price, Columns

Last weekend, I realized how tough it is to do certain things due to Charcot-Marie-Tooth disease (CMT). It affects my balance, coordination, gait, and dexterity in my hands. That ... Read more

June 11, 2019June 7, 2019

My Appreciation of the Online CMT Community Has Grown

Columns, On My Own Two by Young Lee

Five years ago, I had a conversation with one of my writer friends. I had heard through the grapevine that she was working on a new story: a thriller ... Read more

June 10, 2019June 7, 2019

Celery Juice: Is It Just a Trend, or More?

CMT and Me - a Column by Jill Price, Columns

A lot of people on the internet are talking about the benefits of celery juice. Scores of people, including celebrities, claim to feel better after drinking 16 ounces of ... Read more

June 4, 2019May 31, 2019

Reminiscing with Friends and Recognizing the Loss of Abilities

Columns, On My Own Two by Young Lee

When I meet up with old college friends, we often spend time reminiscing. We recall late nights, trips, and past relationships. Looking back, we think about how much has ... Read more

June 3, 2019May 29, 2019

Can Having CMT Be a Good Thing?

CMT and Me - a Column by Jill Price, Columns

The other day, someone posed the question, “What do you hate the most about having Charcot-Marie-Tooth?” I could probably write a book about what I hate about this disease. ... Read more

May 28, 2019May 27, 2019

Thinking About the Line Between Nostalgia and Glamorization

Columns, On My Own Two by Young Lee

This past week, I grabbed lunch with an old friend, Kevin Schaefer. He writes a great column for SMA News Today. Our conversations over lunch usually revolve around nerdy ... Read more

May 21, 2019May 17, 2019

I’m Hoping to Bump into Others Like Me

Columns, On My Own Two by Young Lee

About 10 years ago, I found myself walking down a busy side street near one of the larger night markets in Taipei, Taiwan. No direct family members lived there, ... Read more

May 20, 2019May 17, 2019

Proud of Me for What?

CMT and Me - a Column by Jill Price, Columns

Why do people tell me they are proud of me for going to the gym? Is that something that I should be proud of? Yes, it is true that ... Read more

May 14, 2019May 10, 2019

I Miss My Childhood Fearlessness of Being Open About My CMT

Columns, On My Own Two by Young Lee

Once, while I was walking down the hallway with my classmates, my high school Spanish teacher asked me if I had hurt my ankles. It may have been the ... Read more

May 13, 2019May 9, 2019

What to Do When Field Trips Are Too Much?

CMT and Me - a Column by Jill Price, Columns

After walking around Jamestown Settlement this past week, I’m really wondering how much longer I, as a schoolteacher, can go on these big field trips. I am not one ... Read more