Columns

April 16, 2019April 12, 2019

‘Bernadette’ and the Importance of Human Interest Stories

A few days ago, my sister messaged me on Facebook about a documentary regarding Charcot-Marie-Tooth disease (CMT) called “Bernadette.” I hadn’t heard about it before, but because I had nothing ... Read more

April 15, 2019April 11, 2019

The Physical Binds of CMT Have Left Me Feeling Excluded

CMT and Me - a Column by Jill Price, Columns

This week at Friday night services, my rabbi’s sermon was about the Torah portion Leviticus 14:1-15:33 and how people were excluded because of illness. He spoke about the isolation ... Read more

April 9, 2019April 5, 2019

Learning More About CMT and Who I Am

Columns, On My Own Two by Young Lee

Until recently, I never had intentionally ventured to learn more about my disability. In retrospect, I was spectacularly uninterested in this aspect of myself. As a child, I think ... Read more

April 8, 2019April 4, 2019

Finding a New Doctor with CMT

CMT and Me - a Column by Jill Price, Columns

When you have a chronic illness, finding a doctor who is knowledgeable about your condition can be a long process. Depending on your disease it may be difficult to ... Read more

April 2, 2019April 1, 2019

Lessons from a Therapist Friend that Can Be Applied to CMT

Columns, On My Own Two by Young Lee

Topics such as setting goals and being more mindful have been on my mind recently. And that’s not by coincidence. A few weeks ago, I met with a friend ... Read more

April 1, 2019March 29, 2019

A Letter to My Younger Self: ‘CMT Doesn’t Define You’

CMT and Me - a Column by Jill Price, Columns

I heard Brad Paisley’s “Letter to Me” the other day. It got me thinking about what I would tell my younger self about growing up with Charcot-Marie-Tooth (CMT) 1a. Dear ... Read more

March 26, 2019March 22, 2019

Lessons from My Grandmother

Columns, On My Own Two by Young Lee

My family members are traveling from around the country this week to gather for a celebration of my grandmother’s 100th birthday. We’re all excited about the event, and though ... Read more

March 25, 2019March 21, 2019

What Ableism Looks Like to a Person with CMT

CMT and Me - a Column by Jill Price, Columns

Ableism is discrimination or prejudice against people with disabilities. It can occur in many ways — some ways subtle and others overt. A person with a disability may experience ... Read more

March 19, 2019March 15, 2019

When Dealing with CMT Symptoms, It’s OK to Improvise

Columns, On My Own Two by Young Lee

Among the many symptoms of Charcot-Marie-Tooth disease is a decrease in hand dexterity. This crossed my mind a few months ago while I was filling up on gas, and ... Read more

March 18, 2019March 15, 2019

Maintaining a Positive Body Image

CMT and Me - a Column by Jill Price, Columns

The Center for Eating Disorders defines body image as the “subjective picture or mental image of one’s own body.” It is how one feels about their body, and can ... Read more

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