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When I started cleaning my place, I thought I’d finish in one evening. I didn’t think that was an unreasonable expectation. An evening is how long it usually takes. However, after vacuuming just my bedroom that Saturday evening, a sense of exhaustion came over me. My feet ached, and when…

I don’t love having Charcot-Marie-Tooth disease (CMT). In fact, if there was a surefire way to rid my body of its symptoms, I would certainly be interested. However, my life is still filled with joy, hope, and a whole lot of fun.  Sometimes I wonder if…

“But you’re not really disabled.” I’ve heard those words, or words to that effect, a few times in my life.  Folks have always said this to me with good intent, seeking to give me hope and encouragement as I manage the symptoms that…

When I was in college, Facebook groups and communities with names like “I want to punch slow walkers in the head” or “Slow walkers deserve to be kicked” were pretty trendy. Several of my friends joined such groups and proudly displayed their memberships…

Living with an invisible, rare disease poses challenges, opportunities, and many lessons. I was diagnosed with Charcot-Marie-Tooth disease (CMT) type 1A as a toddler, and I’m now approaching 49. Those early memories of life with CMT are murky, but I recall visits to our local children’s hospital, where my…

When a batter hits a baseball in just the right way, the impact makes a sound that’s pretty darn satisfying. It’s the distinctive “crack” that many folks think of when they think about their favorite baseball highlights. It’s the sound associated with evenings in packed stadiums, cold beer,…

If I’m going to wield a weapon and fight in a war, I want to be conscious of the intricacies of the weapon I’m supposed to wield. And I’d certainly want to know which side I’m fighting on. A character in one of my favorite movies…

I had just exited the county building after getting my second shot of the COVID-19 vaccine and was making my way across the parking lot toward my car. Then I heard a man calling out from behind me. When I turned…

I’m no Gordon Ramsay. And it’d be insulting to actual professionals if I were to call myself a chef or even a home cook. However, I do feel fairly comfortable in my kitchen. I enjoy cooking,…

A long time ago, a friend asked if there was anything I wished I could do that was outside my ability, capability, or means. The question wasn’t prompted by familiarity with my Charcot-Marie-Tooth disease (CMT) or anything of the sort. Rather, it was…