Posts by: Young Lee

Young Lee

August 6, 2019August 6, 2019

A Walk in the Park for CMT Brings Us a Step Closer to a Cure

Columns, On My Own Two by Young Lee

“If they’re really thinking about their audience, and if they provide water bottles, they’ll also have hand grips there,” my father said, as he drove my sister and I ... Read more

July 30, 2019July 26, 2019

Invisible Disability Clashes with Public Perception

Columns, On My Own Two by Young Lee

I was the only Asian-American on my college study-abroad trip to China that year. I couldn’t speak much Mandarin at all, but still, I could recognize the absurdity when ... Read more

July 23, 2019July 19, 2019

What Does It Meme to Be a Part of the CMT Community?

Columns, On My Own Two by Young Lee

A few days ago, I found myself searching online for Charcot-Marie-Tooth (CMT) memes. While my actions might seem a bit juvenile, I needed a laugh. I was also looking ... Read more

July 16, 2019July 12, 2019

I’m Learning More About the Push for Disability Rights

Columns, On My Own Two by Young Lee

In April 1977 more than 100 people with disabilities entered the Department of Health, Education, and Welfare (HEW) office in San Francisco and, in protest, they refused to leave.  Three ... Read more

July 9, 2019July 3, 2019

I’m Coming Out of My CMT Closet to Talk About My Disease

Columns, On My Own Two by Young Lee

I remember being a moody preteen and exasperating my tennis instructor. He was convinced that I wasn’t trying. I was slow to react and sluggish on the court. I ... Read more

July 2, 2019June 28, 2019

Going Over My Old CMT Records

Columns, On My Own Two by Young Lee

“Referred mainly because of toe-walking.”  “Well, these few words solve a bit of a mystery for me,” I thought. A few weeks ago, I contacted my former pediatrician’s office ... Read more

June 25, 2019July 10, 2019

Jamal Hill: Pushing the Limits with CMT

Columns, On My Own Two by Young Lee

Jamal Hill likes to keep a busy schedule. After all, he’s hoping to qualify for the 2020 Paralympic Games in Tokyo. And although he’s currently the No. 1 ranked ... Read more

June 18, 2019June 14, 2019

We Are More Than Our Mutations

Columns, On My Own Two by Young Lee

Linda Crabtree’s autobiography, “CMT and Me,” begins with loving descriptions of her parents. Her words, accompanied by childhood photos printed on the pages, gave me a vivid sense of ... Read more

June 11, 2019June 7, 2019

My Appreciation of the Online CMT Community Has Grown

Columns, On My Own Two by Young Lee

Five years ago, I had a conversation with one of my writer friends. I had heard through the grapevine that she was working on a new story: a thriller ... Read more

June 4, 2019May 31, 2019

Reminiscing with Friends and Recognizing the Loss of Abilities

Columns, On My Own Two by Young Lee

When I meet up with old college friends, we often spend time reminiscing. We recall late nights, trips, and past relationships. Looking back, we think about how much has ... Read more