Posts by: Young Lee

Five years ago, I had a conversation with one of my writer friends. I had heard through the grapevine that she was working on a new story: a thriller ... Read more

June 4, 2019May 31, 2019

Reminiscing with Friends and Recognizing the Loss of Abilities

Columns, On My Own Two by Young Lee

When I meet up with old college friends, we often spend time reminiscing. We recall late nights, trips, and past relationships. Looking back, we think about how much has ... Read more

May 28, 2019May 27, 2019

Thinking About the Line Between Nostalgia and Glamorization

Columns, On My Own Two by Young Lee

This past week, I grabbed lunch with an old friend, Kevin Schaefer. He writes a great column for SMA News Today. Our conversations over lunch usually revolve around nerdy ... Read more

May 21, 2019May 17, 2019

I’m Hoping to Bump into Others Like Me

Columns, On My Own Two by Young Lee

About 10 years ago, I found myself walking down a busy side street near one of the larger night markets in Taipei, Taiwan. No direct family members lived there, ... Read more

May 14, 2019May 10, 2019

I Miss My Childhood Fearlessness of Being Open About My CMT

Columns, On My Own Two by Young Lee

Once, while I was walking down the hallway with my classmates, my high school Spanish teacher asked me if I had hurt my ankles. It may have been the ... Read more

May 7, 2019May 3, 2019

Lessons I’ve Learned from a Children’s Book About Charcot-Marie-Tooth

Columns, On My Own Two by Young Lee

Charcot-Marie-Tooth. The first word is pronounced like “Shar-ko.” And it has nothing to do with shark teeth. That’s how Arlene, the protagonist of “Arlene on the Scene,” clears up ... Read more

April 30, 2019April 29, 2019

Lights, Camera, Understanding: Actors with Disabilities Offer a Reality Check

Columns, On My Own Two by Young Lee

I couldn’t help but smile when I saw Bernadette Scarduzio pop up in the final moments of Episode 3 of the sixth season of “Orange Is the New Black.” ... Read more

April 23, 2019April 22, 2019

Catching Up with Bernadette Scarduzio Years After Her Documentary Film

Columns, On My Own Two by Young Lee

The 2013 documentary film “Bernadette” was a milestone for Bernadette Scarduzio in many ways. It wasn’t just the first movie project she was a part of, it also was ... Read more

April 16, 2019April 12, 2019

‘Bernadette’ and the Importance of Human Interest Stories

Columns, On My Own Two by Young Lee

A few days ago, my sister messaged me on Facebook about a documentary regarding Charcot-Marie-Tooth disease (CMT) called “Bernadette.” I hadn’t heard about it before, but because I had nothing ... Read more

April 9, 2019April 5, 2019

Learning More About CMT and Who I Am

Columns, On My Own Two by Young Lee

Until recently, I never had intentionally ventured to learn more about my disability. In retrospect, I was spectacularly uninterested in this aspect of myself. As a child, I think ... Read more

Posts by: Young Lee

Young Lee

My Appreciation of the Online CMT Community Has Grown

Reminiscing with Friends and Recognizing the Loss of Abilities

Thinking About the Line Between Nostalgia and Glamorization

I’m Hoping to Bump into Others Like Me

I Miss My Childhood Fearlessness of Being Open About My CMT

Lessons I’ve Learned from a Children’s Book About Charcot-Marie-Tooth

Lights, Camera, Understanding: Actors with Disabilities Offer a Reality Check

Catching Up with Bernadette Scarduzio Years After Her Documentary Film

‘Bernadette’ and the Importance of Human Interest Stories

Learning More About CMT and Who I Am

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