Posts by: Young Lee

At the beginning of every episode of “Mister Rogers’ Neighborhood,” Fred Rogers walked through a door and greeted his audience by singing the show’s theme, “Won’t You Be My ... Read more

January 7, 2020January 6, 2020

‘Mentionable and Manageable’: What Mr. Rogers Taught Me About CMT Advocacy

Columns, On My Own Two by Young Lee

For many years, my childhood bedroom featured a photo of Mr. McFeely, the friendly mailman from the beloved children’s television series “Mister Rogers’ Neighborhood.” It was as a souvenir ... Read more

December 10, 2019December 6, 2019

Experimenting with Cubing As a Way to Maintain My Abilities

Columns, On My Own Two by Young Lee

For the past few weeks, I’ve been studying sequences of hand movements and letter combinations. For example, U, R, U’, L’, U, R’, U’, L was one combination I ... Read more

December 3, 2019November 28, 2019

Book Is a Tribute to the Lady in the Pink Dress

Columns, On My Own Two by Young Lee

The North Carolina Museum of Art has a few paintings by Andrew Wyeth. One of them is “Weather Side,” which depicts a side of the house where Christina Olson ... Read more

November 26, 2019November 22, 2019

Thinking about ‘Christina’s World’ and CMT

Columns, On My Own Two by Young Lee

Until recently, I never took anything written by art critics personally. But a few weeks ago I started reading criticism of Andrew Wyeth’s painting “Christina’s World.” With each critique, ... Read more

November 19, 2019November 15, 2019

A Graphic Novel Reminded Me of My Childhood Perspective of CMT

Columns, On My Own Two by Young Lee

Through her loosely autobiographical graphic novel, “El Deafo,” author Cece Bell introduces readers to her childhood self as she tries to navigate her way through relationships and hijinks at ... Read more

November 12, 2019November 8, 2019

Having Those Awkward Conversations About CMT

Columns, On My Own Two by Young Lee

“I like your shirt.” I didn’t expect to hear such a comment while wearing my Charcot-Marie-Tooth Association (CMTA) T-shirt. It happened twice in the past two months, and when ... Read more

November 5, 2019November 1, 2019

My Footprints Are Reminders of My Weakness

Columns, On My Own Two by Young Lee

I leave strange footprints. Luckily, I usually walk on solid ground and don’t need to think about them. Most days, I only encounter paved streets and driveways, carpeted floors, ... Read more

October 29, 2019October 25, 2019

Thoughts on CMT and ‘Askew’

Columns, On My Own Two by Young Lee

“Askew,” a work of art by American painter and sculptor Roxy Paine, stands just outside the West Building at the North Carolina Museum of Art. It’s an almost 50-foot, tree-like ... Read more

October 22, 2019October 18, 2019

Reflections on Lessons Learned from Friends with Different Disabilities

Columns, On My Own Two by Young Lee

At the start of 2019, I knew little about Charcot-Marie-Tooth (CMT). My lack of knowledge about the disease meant that I had gaps in understanding of myself, a person ... Read more

Posts by: Young Lee

Young Lee

Mister Rogers Taught Me These Lessons About Managing CMT

‘Mentionable and Manageable’: What Mr. Rogers Taught Me About CMT Advocacy

Experimenting with Cubing As a Way to Maintain My Abilities

Book Is a Tribute to the Lady in the Pink Dress

Thinking about ‘Christina’s World’ and CMT

A Graphic Novel Reminded Me of My Childhood Perspective of CMT

Having Those Awkward Conversations About CMT

My Footprints Are Reminders of My Weakness

Thoughts on CMT and ‘Askew’

Reflections on Lessons Learned from Friends with Different Disabilities

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