On My Own Two — Young Lee

I remember the first time I saw the Zeen. A fellow Charcot-Marie-Tooth (CMT) patient had posted a video and some pictures of it on social media. From their posts, it was clear that this device was similar…

After a recent conversation with Bernadette Scarduzio, my friend and fellow Charcot-Marie-Tooth (CMT) advocate, regarding the inaccessibility of short-term rentals, I’ve been thinking a lot about accessibility. It’s a buzzword in the disability community, but for…

There are many things we in the Charcot-Marie-Tooth (CMT) community mourn. Among them are old passions, activities we used to love, and dreams we might’ve realized had CMT symptoms not gotten in the way. But in speaking…

Those of us with Charcot-Marie-Tooth disease (CMT) know it touches nearly every aspect of our lives. That’s true for anyone who is similarly disabled or has a chronic condition. For CMTers, the disease symptoms affect our mobility.

Touch, taste, smell, hearing, and seeing: I don’t know if things are different these days, but when I was in elementary school, those were the five senses I learned from my teachers and textbooks. Until recently, I didn’t know…

For much of my life, I avoided talking about Charcot-Marie-Tooth disease (CMT) and how it affects me. I didn’t mention it to the personal trainers I worked with, and most of my teachers and college friends were unaware…

Roger Ebert, the late film critic, said many things about the long careers of actors Robert De Niro and Al Pacino. But one particular observation of his has stuck with me over the years. In his review…

A woman walks into a coffee shop, orders a coffee, and looks around for the man she’s agreed to meet — her date. When she spots him waving at her from a table he’s found for them, she starts…

I imagine most have heard the phrase “the truth will set you free.” I’ve heard some folks apply these words as general advice against spreading lies. Others appreciate the Christian roots of the phrase. I once even…

I don’t plan to ever discourage anyone from making New Year’s resolutions. But I also like to think I’m not the only one who, at one point or another, had an aspiration to get fit and set it as…

On Halloween evening, I sat outside on a beach chair with a tub of candy in front of me. It had been a long time since I last handed out Halloween candy to the neighborhood kids. The past few…

How do those of us with Charcot-Marie-Tooth disease (CMT) communicate how it affects us and explain what it’s like to be a CMTer? As someone who has fairly mild CMT symptoms, I’ve described the disease as a…