News New MCM3AP Mutation Linked to 3 Cases of CMT and Multiple Sclerosis Within One Family

News CMTA Special Adviser Issues $500K Matching-donation Challenge to Boost CMT2 Research Efforts

News Inherited Neuropathy Consortium Awarded $7.2M to Continue Studying, Improve Care for CMT

News UK Charity Seeks to Boost CMT Knowledge During Awareness Month in October

Columns, On My Own Two by Young Lee It’s Time to Call CMT by Its Name

CMT and Me - a Column by Jill Price, Columns I’m Learning to Accept the Benefits of My Mobility Aids

News Mutations Change Shape of Gene’s Protein to Determine Severity of CMT, Study Suggests

Columns, On My Own Two by Young Lee Trying Meditation as a Form of Self-care

News Small RNA Molecule miR-29a May Have Therapeutic Role in CMT1A, Study Says

CMT and Me - a Column by Jill Price, Columns Chronic Illness Makes Self-care Essential

News NORD 2019 Rare Disease Summit Set for Oct. 21-22 in Washington, DC

News 2 CMT Research Projects Among 25 MDA Grants Totaling More Than $6.6M

Columns, On My Own Two by Young Lee Adjusting My Diet to Better Manage CMT

News CMTRF/AcuraStem Partnership Yields Promising CMT2A Therapy

CMT and Me - a Column by Jill Price, Columns There’s More to Me Than CMT

News CMT Association Grants $335K to Research Projects that Advance Therapy Development

Columns, On My Own Two by Young Lee Making Connections and Finding Camaraderie at My First CMTA Conference

CMT and Me - a Column by Jill Price, Columns Can Magnesium Help My CMT Symptoms?

News Passage Bio Launches New Gene Therapy Program for CMT2A

News September Is Charcot-Marie-Tooth Awareness Month

CMT and Me - a Column by Jill Price, Columns CMT Awareness Month Is an Opportunity to Share and Educate

News Pharnext to Launch New Phase 3 Trial of PXT3003 for CMT1A

Columns, On My Own Two by Young Lee Is It Me or My CMT?

News Ep400 Protein Required for the Normal Function of Myelin-producing Schwann Cells, Mouse Study Shows

News ‘Disorder’ Film Festival Offers Look at Siblings Touched by Rare Diseases

News At NY Genome Center, Legal Expert Presents Ethical Dilemmas in Gene Editing

News Discovery of Protein Transport in Eye Neurons May Have Implications for CMT

Columns, On My Own Two by Young Lee My Version of ‘Chongxi’ and CMT

News First Chinese Case of CMT4F Linked to Mutation in PRX Gene

CMT and Me - a Column by Jill Price, Columns Back-to-school Tips and Tricks

News Study Examines Respiratory Muscle Weakness in Ambulatory CMT1A Patients

News Nebraska’s Neena Nizar Seeks Cure for Jansen’s, One of World’s Rarest Diseases

News Hearing Aid Trials Recommended After Study Reports Variable Hearing Problems

CMT and Me - a Column by Jill Price, Columns Facing Off Against Social Media Anxiety

News Neutral Lipid-Enriched Diet Improves Nerve Protection in CMT Mouse Model

CMT and Me - a Column by Jill Price, Columns My Favorite Fashion Bloggers for Readers with Disabilities

News PMP22 Defects May Be Link Between CMT1A and MS, Case Report Says

Columns, On My Own Two by Young Lee A Walk in the Park for CMT Brings Us a Step Closer to a Cure

News Report Describes Boys Diagnosed with CMTX After Stroke-like Symptoms

CMT and Me - a Column by Jill Price, Columns Is There a Connection Between Joint Pain and the Weather?

News Rare Disease Groups Seek Public Support to Renew Newborn Screening Act in Senate

News Oklahoma Ranks Lowest on Programs Key to Rare Diseases on NORD’s 2019 State Report Card

Columns, On My Own Two by Young Lee Invisible Disability Clashes with Public Perception

CMT and Me - a Column by Jill Price, Columns I’m Learning to Deal with Comments About My AFOs

News HNF’s Estela Lugo Helps Raise Awareness of CMT

News Natural History Study of CMT4J Aims to Support Future Development of Gene Therapy Trial

Columns, On My Own Two by Young Lee What Does It Meme to Be a Part of the CMT Community?

News European Initiative Targets Diagnosis, Treatment of Rare Diseases

News Foot Function Index Captures Well the Impact of Foot Impairments in Patients With CMT1A, Study Suggests

Columns, On My Own Two by Young Lee I’m Learning More About the Push for Disability Rights

CMT and Me - a Column by Jill Price, Columns Adaptive Clothing Is an Option … Maybe

News Schwann Cells Discovery May Be Good News for CMT Research

Columns, On My Own Two by Young Lee I’m Coming Out of My CMT Closet to Talk About My Disease

News $10M in NINDS Grants Will Support CMT Biomarkers Project at URMC

CMT and Me - a Column by Jill Price, Columns Progress Can Be Better Than Seeking Perfection

News World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients

Columns, On My Own Two by Young Lee Going Over My Old CMT Records

News Structure and Workings of Key Mutated Protein in CMT Type 2Y Detailed in Study

CMT and Me - a Column by Jill Price, Columns My Love-hate Relationship with Summer

News Poorer Physical Activity in CMT Children Linked with Higher Disability

News NORD Honors Industry, Patient Advocates at Rare Impact Awards Gala

Columns, On My Own Two by Young Lee Jamal Hill: Pushing the Limits with CMT

News Study Identifies CMT-Causing Mutations in Novel Gene

CMT and Me - a Column by Jill Price, Columns Raising Awareness About Chronic Illness and Depression

News New Mutations Found in Korean Patients With CMT4C, Research Shows

News Eurordis Unveils Integrated-care Initiative for Rare Disease Patients

News New Gene Modifiers May Explain Disease Variability in CMT1A, Study Suggests

Columns, On My Own Two by Young Lee We Are More Than Our Mutations

News ‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy

News New GARS Mutation Found in First Cases of African Patients with CMT2D

CMT and Me - a Column by Jill Price, Columns A Few Hacks I’ve Found for Dealing with Clothing Issues

News Scientists Find 2 New Mutations Associated With Milder Form of CMT4H

Columns, On My Own Two by Young Lee My Appreciation of the Online CMT Community Has Grown

News Greater Disease Severity and Faster Progression in CMT type 4B1 than CMT4B2, Study Reports

CMT and Me - a Column by Jill Price, Columns Celery Juice: Is It Just a Trend, or More?

News Study Reports Newly Identified CMT1X-Causing Gene Mutations

Columns, On My Own Two by Young Lee Reminiscing with Friends and Recognizing the Loss of Abilities

News Whole-Genome Sequencing Necessary to Diagnose CMT in Some Patients, Case Report Highlights

CMT and Me - a Column by Jill Price, Columns Can Having CMT Be a Good Thing?

News Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries

News Surgery Does Not Appear to Improve Foot Function, Quality of Life in Kids with CMT, Small Study Suggests

Columns, On My Own Two by Young Lee Thinking About the Line Between Nostalgia and Glamorization

News Coping and Hoping: CMT Patient Keeps Going

Columns, On My Own Two by Young Lee I’m Hoping to Bump into Others Like Me

News CMT Association Shares Latest Disease Therapies, Research at Conference

CMT and Me - a Column by Jill Price, Columns Proud of Me for What?

News #AANAM – Gene Therapy Treats CMTX Even After Disease Onsest, Mouse Study Suggests

News Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns

Columns, On My Own Two by Young Lee I Miss My Childhood Fearlessness of Being Open About My CMT

News #AANAM — Combined Gene Therapy/RNA Strategy May Correct Cellular Changes in CMT2A, Study Suggests

CMT and Me - a Column by Jill Price, Columns What to Do When Field Trips Are Too Much?

News #AANAM – Follow-up Study of DI-CMTC Patients Shows Progressive Nerve Damage, Gait Deterioration

Columns, On My Own Two by Young Lee Lessons I’ve Learned from a Children’s Book About Charcot-Marie-Tooth

CMT and Me - a Column by Jill Price, Columns If Life Had No Limitations, Would It Look Any Different?

Columns, On My Own Two by Young Lee Lights, Camera, Understanding: Actors with Disabilities Offer a Reality Check

News Nonprofit Group Works to Raise Rare Disease Awareness in India

Columns, On My Own Two by Young Lee Catching Up with Bernadette Scarduzio Years After Her Documentary Film

News New LRSAM1 Gene Mutations Found in French Families with CMT Type 2, Researchers Report

CMT and Me - a Column by Jill Price, Columns The Good, the Bad, and the Ugly of Charcot-Marie-Tooth

News CMTA Grants Thousands in Funding for STAR Research Projects