Oh, No! I Have to Go Again!
Do you ever have to rush to the bathroom? Are there times when you feel you cannot control the urge? Or perhaps you urinate ... Read more
Updates
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Tendon Transfer Surgery May Minimize CMT-related Foot Drop, Study Suggests
Foot drop in Charcot-Marie-Tooth disease may be corrected by transferring the end part of specific leg muscles to the midfoot region, researchers report. The ... Read more -
Chopsticks Remind Me of CMT and Disability
I felt like a child again — and not in a good way. It was a shock and I felt pathetic. But while holding ... Read more -
HNF’s ‘Movement is Medicine’ Summit Unites and Encourages All with CMT
Allison Moore remembers how doctors advised her to be careful and avoid physical activity after diagnosing her with Charcot-Marie-Tooth (CMT) disease 30 years ago. The ... Read more -
Can Charcot-Marie-Tooth Affect Breathing?
I have days when I cannot catch my breath. I may not be exercising or doing something strenuous when this happens. It can happen ... Read more
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PXT3003 Improves Clinical Outcomes and Stabilizes Disease Progression in CMT1A Patients, Extension Study Shows
Pharnext’s oral experimental treatment PXT3003 was found to be safe and effective for patients with ... -
Mister Rogers Taught Me These Lessons About Managing CMT
At the beginning of every episode of “Mister Rogers’ Neighborhood,” Fred Rogers walked through ... -
Common Mutations Linked to CMT in Southern Italy Highlighted in Study
Charcot-Marie-Tooth disease type 1A (CMT1A) caused by a duplication in the DNA sequence of ... -
Case Report Describes White Matter Lesions, New Mutations In CMTX
Central nervous system (CNS) dysfunction, manifesting as reversible posterior leukoencephalopathy , was observed in ... -
‘Mentionable and Manageable’: What Mr. Rogers Taught Me About CMT Advocacy
For many years, my childhood bedroom featured a photo of Mr. McFeely, the friendly ...
Despite Functional Limitations, Few CMT Patients Receive Physical and Occupational Therapy
News
Most people with Charcot-Marie-Tooth (CMT) disease do not receive physical or occupational therapy, despite having extensive problems with physical functioning that limit mobility and quality of life, according to a report presented at the American Association of Neuromuscular & ... Read more