A CMT Tattoo Has Taught Me About the Value of True Friendship
How do you know you are important to people? What is a sign that you are not only loved but really important to them? ... Read more
Updates
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5th Annual Cycle 4 CMT Event in Vermont Invites Cyclists, Walkers to Raise Funds for CMT Research
Cyclists, walkers, and supporters will gather Aug. 26 in Charlotte, Vermont, to bike, walk, and raise funds to help find a cure for Charcot-Marie-Tooth ... Read more -
My AFO Saga Continues
In my continuing ankle-foot orthosis journey, I picked up my new AFO for my left foot. It has been a very different experience from ... Read more -
Use of Orthotics Linked to Improved Gait, Balance in CMT Patients, Review Study Finds
Use of orthoses such as braces or other special devices can help improve the gait and balance of patients with Charcot-Marie-Tooth disease, but patients ... Read more -
9 Newly Identified SBF2 Mutations Found in CMT Subtype, CMT4B2
Nine previously unknown mutations in the SBF2 gene were found to cause an extremely rare type of Charcot-Marie-Tooth (CMT) disease, called CMT4B2, in seven families. ... Read more
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Dealing with My Son’s CMT
My 14-year-old son has Charcot-Marie-Tooth disease, but you would never know it. He is ... -
Regenacy Partners with CMTA to Advance Development of Ricolinostat for Treating CMT
Regenacy Pharmaceuticals is partnering with the Charcot-Marie-Tooth Association (CMTA) to help develop the investigative therapy ... -
Specific Rehab Protocol Improves Hand Function in CMT Patients, Study Reports
A specific rehabilitation protocol improves hand function and is well-tolerated by patients with Charcot-Marie-Tooth ... -
I Don’t View CMT As a Struggle. Here’s Why.
“I appreciate the struggle. I have mobility issues, too.” A person I had just ... -
PNF Exercises Can Help CMT1A Patients Prevent Foot Drop, Study Suggests
Proprioceptive neuromuscular facilitation (PNF) muscle-stretching exercises can help prevent foot drop in patients with ... -
Positive Phase 2 CMT Trial Results of Acceleron’s ACE-083 Presented at Meeting
Acceleron’s therapy candidate ACE-083 was seen to improve total and contractile muscle volume in patients ...
Despite Functional Limitations, Few CMT Patients Receive Physical and Occupational Therapy
News
Most people with Charcot-Marie-Tooth (CMT) disease do not receive physical or occupational therapy, despite having extensive problems with physical functioning that limit mobility and quality of life, according to a report presented at the American Association of Neuromuscular & ... Read more