Second in a series. Read part one. Last year, the world lost a powerful voice in the disability community with the death of Alice Wong. Born with a type of spinal muscular atrophy (SMA), her life was not given much attention by mainstream media, and her ideas…
Discussion
First in a series. There’s a part of me that can’t shake the belief that physical weakness is woven into the fabric of my identity. This realization surfaced unexpectedly after I read about Hafþór Björnsson, the Icelandic strongman and world record holder for the heaviest deadlift, who sports…
Becoming educated and informed about Charcot-Marie-Tooth disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CMT journey.
There is no cure for CMT yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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