News Study Examines Respiratory Muscle Weakness in Ambulatory CMT1A Patients

News Nebraska’s Neena Nizar Seeks Cure for Jansen’s, One of World’s Rarest Diseases

News Hearing Aid Trials Recommended After Study Reports Variable Hearing Problems

CMT and Me - a Column by Jill Price, Columns Facing Off Against Social Media Anxiety

News Neutral Lipid-Enriched Diet Improves Nerve Protection in CMT Mouse Model

CMT and Me - a Column by Jill Price, Columns My Favorite Fashion Bloggers for Readers with Disabilities

News PMP22 Defects May Be Link Between CMT1A and MS, Case Report Says

Columns, On My Own Two by Young Lee A Walk in the Park for CMT Brings Us a Step Closer to a Cure

News Report Describes Boys Diagnosed with CMTX After Stroke-like Symptoms

CMT and Me - a Column by Jill Price, Columns Is There a Connection Between Joint Pain and the Weather?

News Rare Disease Groups Seek Public Support to Renew Newborn Screening Act in Senate

News Oklahoma Ranks Lowest on Programs Key to Rare Diseases on NORD’s 2019 State Report Card

Columns, On My Own Two by Young Lee Invisible Disability Clashes with Public Perception

CMT and Me - a Column by Jill Price, Columns I’m Learning to Deal with Comments About My AFOs

News HNF’s Estela Lugo Helps Raise Awareness of CMT

News Natural History Study of CMT4J Aims to Support Future Development of Gene Therapy Trial

Columns, On My Own Two by Young Lee What Does It Meme to Be a Part of the CMT Community?

News European Initiative Targets Diagnosis, Treatment of Rare Diseases

News Foot Function Index Captures Well the Impact of Foot Impairments in Patients With CMT1A, Study Suggests

Columns, On My Own Two by Young Lee I’m Learning More About the Push for Disability Rights

CMT and Me - a Column by Jill Price, Columns Adaptive Clothing Is an Option … Maybe

News Schwann Cells Discovery May Be Good News for CMT Research

Columns, On My Own Two by Young Lee I’m Coming Out of My CMT Closet to Talk About My Disease

News $10M in NINDS Grants Will Support CMT Biomarkers Project at URMC

CMT and Me - a Column by Jill Price, Columns Progress Can Be Better Than Seeking Perfection

News World’s First Alport Stamp Is Macedonian Mom’s Latest Win for Rare Disease Patients

Columns, On My Own Two by Young Lee Going Over My Old CMT Records

News Structure and Workings of Key Mutated Protein in CMT Type 2Y Detailed in Study

CMT and Me - a Column by Jill Price, Columns My Love-hate Relationship with Summer

News Poorer Physical Activity in CMT Children Linked with Higher Disability

News NORD Honors Industry, Patient Advocates at Rare Impact Awards Gala

Columns, On My Own Two by Young Lee Jamal Hill: Pushing the Limits with CMT

News Study Identifies CMT-Causing Mutations in Novel Gene

CMT and Me - a Column by Jill Price, Columns Raising Awareness About Chronic Illness and Depression

News New Mutations Found in Korean Patients With CMT4C, Research Shows

News Eurordis Unveils Integrated-care Initiative for Rare Disease Patients

News New Gene Modifiers May Explain Disease Variability in CMT1A, Study Suggests

Columns, On My Own Two by Young Lee We Are More Than Our Mutations

News ‘Rare Barometer’ Program Helps Eurordis Shape EU Rare Disease Policy

News New GARS Mutation Found in First Cases of African Patients with CMT2D

CMT and Me - a Column by Jill Price, Columns A Few Hacks I’ve Found for Dealing with Clothing Issues

News Scientists Find 2 New Mutations Associated With Milder Form of CMT4H

Columns, On My Own Two by Young Lee My Appreciation of the Online CMT Community Has Grown

News Greater Disease Severity and Faster Progression in CMT type 4B1 than CMT4B2, Study Reports

CMT and Me - a Column by Jill Price, Columns Celery Juice: Is It Just a Trend, or More?

News Study Reports Newly Identified CMT1X-Causing Gene Mutations

Columns, On My Own Two by Young Lee Reminiscing with Friends and Recognizing the Loss of Abilities

News Whole-Genome Sequencing Necessary to Diagnose CMT in Some Patients, Case Report Highlights

CMT and Me - a Column by Jill Price, Columns Can Having CMT Be a Good Thing?

News Agency Unveils RaDaR to Help Patient Groups Develop Rare Disease Registries

News Surgery Does Not Appear to Improve Foot Function, Quality of Life in Kids with CMT, Small Study Suggests

Columns, On My Own Two by Young Lee Thinking About the Line Between Nostalgia and Glamorization

News Coping and Hoping: CMT Patient Keeps Going

Columns, On My Own Two by Young Lee I’m Hoping to Bump into Others Like Me

News CMT Association Shares Latest Disease Therapies, Research at Conference

CMT and Me - a Column by Jill Price, Columns Proud of Me for What?

News #AANAM – Gene Therapy Treats CMTX Even After Disease Onsest, Mouse Study Suggests

News Rare Diseases Constitute a ‘Public Health Issue,’ NCATS Director Warns

Columns, On My Own Two by Young Lee I Miss My Childhood Fearlessness of Being Open About My CMT

News #AANAM — Combined Gene Therapy/RNA Strategy May Correct Cellular Changes in CMT2A, Study Suggests

CMT and Me - a Column by Jill Price, Columns What to Do When Field Trips Are Too Much?

News #AANAM – Follow-up Study of DI-CMTC Patients Shows Progressive Nerve Damage, Gait Deterioration

Columns, On My Own Two by Young Lee Lessons I’ve Learned from a Children’s Book About Charcot-Marie-Tooth

CMT and Me - a Column by Jill Price, Columns If Life Had No Limitations, Would It Look Any Different?

Columns, On My Own Two by Young Lee Lights, Camera, Understanding: Actors with Disabilities Offer a Reality Check

News Nonprofit Group Works to Raise Rare Disease Awareness in India

Columns, On My Own Two by Young Lee Catching Up with Bernadette Scarduzio Years After Her Documentary Film

News New LRSAM1 Gene Mutations Found in French Families with CMT Type 2, Researchers Report

CMT and Me - a Column by Jill Price, Columns The Good, the Bad, and the Ugly of Charcot-Marie-Tooth

News CMTA Grants Thousands in Funding for STAR Research Projects

Columns, On My Own Two by Young Lee ‘Bernadette’ and the Importance of Human Interest Stories

News Further Research Needed to Understand Link Between Mutations in tRNA Enzymes and Charcot-Marie-Tooth Disease, Researchers Say

CMT and Me - a Column by Jill Price, Columns The Physical Binds of CMT Have Left Me Feeling Excluded

News Economic Burden of CMT Treatment Increases with Disease Severity, Age, German Study Reports

Columns, On My Own Two by Young Lee Learning More About CMT and Who I Am

News High Incidence of Facial Spasms, Nerve Pain Found in Related CMT1B Patients

CMT and Me - a Column by Jill Price, Columns Finding a New Doctor with CMT

News MDA Conference Bringing Neuromuscular Disease Experts to Orlando to Share ‘New Era’ in Treatment, Research

Columns, On My Own Two by Young Lee Lessons from a Therapist Friend that Can Be Applied to CMT

News Gene Therapy for CMT4C Fares Well in Preliminary Tests in Mice

CMT and Me - a Column by Jill Price, Columns A Letter to My Younger Self: ‘CMT Doesn’t Define You’

News Increased Levels of MFN1 Protein Can Reverse Features of CMT2A in Mice, Study Shows

Columns, On My Own Two by Young Lee Lessons from My Grandmother

News Dixon-based MRI a Reliable, Sensitive Measure of Muscle Degeneration in CMT, Study Suggests

CMT and Me - a Column by Jill Price, Columns What Ableism Looks Like to a Person with CMT

News CMTA Plans Host of Events for Charcot-Marie-Tooth Patients, Caregivers

Columns, On My Own Two by Young Lee When Dealing with CMT Symptoms, It’s OK to Improvise

CMT and Me - a Column by Jill Price, Columns Maintaining a Positive Body Image

News Researchers Report CMT2-causing Mutation in the EGR2 Gene

News Brexit Could Have Real Effects for UK Rare Disease Patients, Experts Warn

Columns, On My Own Two by Young Lee Pondering Questions of CMT and Identity

News Moral Dilemmas Complicate Treatment of Rare Diseases, Says Israeli Bioethicist

News Observational Trial Recruiting Participants to Identify New CMT-related Mutations

CMT and Me - a Column by Jill Price, Columns Navigating the Bleachers at My Son’s School Was Worth the Effort

CMT and Me - a Column by Jill Price, Columns What Accommodations Are Available to Help My Son in School?

News ACE-083 Granted FDA’s Orphan Drug Status to Treat Charcot-Marie-Tooth Disease

Columns, On My Own Two by Young Lee Leaning on Friends

News Elizabethtown College Student Seeks CMT Patients for Online Survey on Daily, Social Activities

News NIH Rare Disease Day Highlights Joint Networks Advancing Array of Research

News US Survey Identifies Top Concerns Among Patients, Families Living with Neuromuscular Diseases