News Fontan Surgery for Heart Defects May Not Be Advisable for CMT1A Patients, Case Study Finds

CMT and Me - a Column by Jill Price, Columns What Can I Do About My Cold Feet?

News Certain Gait Scores Can Help Identify CMT and Determine Severity, Study Suggests

CMT and Me - a Column by Jill Price, Columns I’m Feeling Overwhelmed by CMT

CMT and Me - a Column by Jill Price, Columns As My AFO Problems Continue, I Opt for a Second Opinion

News #NORDSummit – Major Issues on Table for Rare Disease Patients in US as Midterm Elections Approach

News CMTA Announces $150,000 Research Challenge Fundraiser for CMT Disease

News Large Study Focuses on CMT Genetic Variants and Age of Onset in Japan

CMT and Me - a Column by Jill Price, Columns Learning to Manage My Spoons

News Study Details How Balance Issues Affect Children and Adolescents with CMT

News International CMT&Me Observational Study to Explore the Impact of CMT Using an App

News PXT3003 Eases Disability, Found Safe in CMT1A Patients, Phase 3 Trial Shows

CMT and Me - a Column by Jill Price, Columns Living with CMT Is Not Always Easy

News Hereditary Neuropathy Foundation Hosts FDA Patient-Focused Drug Development Meeting

News Sarepta Acquires Rights to CMT Gene Therapy Program from Nationwide Children’s Hospital

News Advocacy Groups, Doctors Question Rising Prices of Rare Disease Treatments

News CMT Research Foundation to Fund Search for Treatments and Cures

CMT and Me - a Column by Jill Price, Columns Can a Gluten-free Diet Help with CMT-related Pain?

News CMTX5 in Brothers Marked by Temporary Muscle Weakness After Fever, Case Report Says

CMT and Me - a Column by Jill Price, Columns Mom Guilt is Worsened by CMT

CMT and Me - a Column by Jill Price, Columns There’s No Need to Apologize

News #NORDSummit – More Than 700 Expected to Attend Oct. 15-16 Rare Disease Summit in Washington

News HNF Launches Improved Online Survey, Hosts CMT Health Summit

News Implanting Stem-derived Schwann Cells Improves Motor Activity, Nerve Regeneration in CMT1A

CMT and Me - a Column by Jill Price, Columns I Can Be Both Disabled and Happy

News CMT Type X May Be Risk Factor for Multiple Sclerosis, Study Suggests

News CMT Awareness Month Celebrated With Events Throughout September

CMT and Me - a Column by Jill Price, Columns What Does ‘Fair’ Mean?

News RNA Molecule Can Regulate Common Pathway of CMT and ALS, Fruit Fly Study Suggests

News Nerve Ultrasound Differentiates CMT1A From Other Subtypes, Study Suggests

News Children With CMT Experience More Frequent and Severe Falls Than Healthy Peers, Study Suggests

CMT and Me - a Column by Jill Price, Columns I Graduated from Physical Therapy

News Reliability of Response Biomarker for CMT1A Validated in US Patients, Study Reports

News Diet High in Fats Can Improve Charcot-Marie-Tooth 1A, Study Suggests

CMT and Me - a Column by Jill Price, Columns A CMT Tattoo Has Taught Me About the Value of True Friendship

News 5th Annual Cycle 4 CMT Event in Vermont Invites Cyclists, Walkers to Raise Funds for CMT Research

CMT and Me - a Column by Jill Price, Columns My AFO Saga Continues

News Use of Orthotics Linked to Improved Gait, Balance in CMT Patients, Review Study Finds

News 9 Newly Identified SBF2 Mutations Found in CMT Subtype, CMT4B2

CMT and Me - a Column by Jill Price, Columns Dealing with My Son’s CMT

News Regenacy Partners with CMTA to Advance Development of Ricolinostat for Treating CMT

News Specific Rehab Protocol Improves Hand Function in CMT Patients, Study Reports

CMT and Me - a Column by Jill Price, Columns I Don’t View CMT As a Struggle. Here’s Why.

News PNF Exercises Can Help CMT1A Patients Prevent Foot Drop, Study Suggests

News PNKP Mutation Causes CMT2 in Large Costa Rican Family, Genetic Study Reveals

News Positive Phase 2 CMT Trial Results of Acceleron’s ACE-083 Presented at Meeting

CMT and Me - a Column by Jill Price, Columns Can Having a Growth Mindset Help with Charcot-Marie-Tooth Disease?

News Levels of 2 Proteins May Be Biomarkers for CMT2 Activity, Progression, Study Suggests

News CMT1A Patients Show Hearing Problems in Noisy Background, Study Reports

CMT and Me - a Column by Jill Price, Columns Summer Is for Wearing Shorts

News $1M Awarded to Clinical Trial to Evaluate MRI in Assessing CMT Patients’ Muscle Changes

News Multiple Ways Gene Now Linked to CMT Type 2, DHTKD1, Causes Disease Traced in Study

News EMA Agrees to Pediatric Investigation Plan to Assess PXT30003 as a Treatment for Children with CMT1A

CMT and Me - a Column by Jill Price, Columns When Communicating with Your Doctor, It’s Important to Detail All Symptoms for a Diagnosis

News Nerve Conduction Test May Help to Diagnose CMTX in People with Signs of CNS Involvement

CMT and Me - a Column by Jill Price, Columns Complicated Decisions to Make About My Hammertoe Surgery

News Study Identifies the Ideal Tests to Improve Clinical Evaluation of CMT1A Patients

News Pharnext Shares Top-Line Results from Pivotal Phase 3 Studies of PXT3003; More to Come

CMT and Me - a Column by Jill Price, Columns Summer Is a Time to Recharge

News Grünenthal Partners with Max Planck Society to Develop CMT Type 1A Treatments

News Study Examines Charcot-Marie-Tooth Type 4C in Norway, Identifies 6 New Mutations

News Proposed Therapy for Neurodegenerative Diseases May Cause Early-onset CMT, Study Suggests

CMT and Me - a Column by Jill Price, Columns Finding the Right Exercise Routine

News Flex Pharma Halts Phase 2 FLX-787 Trial in CMT Patients Due to Tolerability Concerns

News Pharnext’s PXT3003 Granted Priority Review in China for Charcot-Marie-Tooth Type 1A

News Treatment with Vincristine Can Reveal Mutation for CMT Type 4, Case Report Shows

CMT and Me - a Column by Jill Price, Columns CMT and the Importance of Being an Advocate for Myself

News TRPV4 Channels, Strongly Linked to CMT2C, Seen to Regulate Structure and Function of Mitochondria in Study

CMT and Me - a Column by Jill Price, Columns When Household Chores Become Too Much with CMT

News US ‘Right to Try’ Law Meets with Mix of Praise and Criticism, Including Among Those with Rare Diseases

News New Gene Mutation Found in Five Family Members with CMTX4, Case Report Shows

News #ERDC2018 – When Treating Rare Disease Patients, Don’t Overlook Quality of Life, Panel Urges

News Muscle Weakness Due to Overuse Evident in Dominant Hands of CMT Patients, Study Reports

News Cochlear Implant Improves Hearing Loss Related to CMT in Case Report

CMT and Me - a Column by Jill Price, Columns Throughout My CMT Journey, My Mom Has Been My Biggest Supporter

News Micro RNA Variant Found that May Be Linked to CMT1A Outcomes

News Study Reveals Key Sequences for Normal Expression of Critical Gene in CMT1A

News ‘Rare Impact Awards’ Dinner Marks Orphan Drug Act and NORD at 35

News #ECRD2018 – EU Must Do More for Rare Disease Patients, Eurordis Leaders Say

News Tumor Suppressor Enzyme May Be Therapeutic Target for CMT4J, Study Suggests

CMT and Me - a Column by Jill Price, Columns Trying Out Physical Therapy with CMT

News New Method to Assess Nerve Fiber Loss Seen to Accurately Measure CMT1 Disability

News Researchers Develop New Approach to ID Genetic Contributors for CMT

CMT and Me - a Column by Jill Price, Columns CMT Might Have Given Me Hearing Loss

News People with Disabilities Strive to Work, Overcome Employment Barriers, Survey Reports

News Lower Muscle Strength, Balance Impairs CMT Type 2 Patients, Study Finds

News #ECRD2018 – Patient Access and Collaboration Focus of Eurordis Meeting May 10-12

CMT and Me - a Column by Jill Price, Columns To Tell or Not to Tell? That Is the Question

News Targeting Key Protein in CMT Type 2A May Be Basis of Future Therapies, Study Suggests

CMT and Me - a Column by Jill Price, Columns What I Am and What I Am Not

News #AAN2018 – Autonomic Nerve Damage Is Widespread and Greatly Affects CMT Patients, Study Shows

News #AAN2018 – Neuropathy-based Scale May Help Predict Mobility Needs in Children with CMT

CMT and Me - a Column by Jill Price, Columns Shoes Are Not Always My Friend

News Clinical Trial to Test New Tool for Assessing CMT’s Severity in Children

News Pharnext, Developer of CMT1A Treatment Candidate PXT3003, Raises 16 Million Euros

News NIH Agency Pioneers Collaborative Research into Rare Diseases

News Balance Walking for CMT May Help Patients Stay Fit, Be Healthier

News Protein Component May Lead to More Severe Case of CMT4F, Mouse Study Suggests

CMT and Me - a Column by Jill Price, Columns Creating Balance to Ward Off Anxiety

News Sox2, Id2 Proteins Play Protective Role in Preventing Cell Damage, CMT1B Mouse Study Finds