Updates

November 24, 2020November 20, 2020
‘The Christmas Bow’ Hits the Mark With Its Depiction of CMT

A few months ago, because I’m on its mailing list, I received an email from the Hereditary Neuropathy Foundation highlighting an opportunity to audition ... Read more
November 24, 2020November 24, 2020
Ancora Funding Vanderbilt Research Into Potential CMT Treatments

Ancora Innovation is funding a research project at Vanderbilt University aiming to realize potential new treatments for Charcot-Marie-Tooth disease (CMT), according to a university press release. ... Read more
November 20, 2020November 18, 2020
Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry

Leaders in the U.S. rare disease community came together recently for a webinar to present helpful information on how to start a nonprofit and ... Read more
November 17, 2020November 16, 2020
Reconnecting With Nature

The trees in North Carolina are beautiful right now. I don’t even mind running into traffic during my commute to work these days. The ... Read more
November 17, 2020November 17, 2020
Drug Screen Finds Dozens of Potential Therapeutic Compounds for CMT2A

AcuraStem has identified 37 compounds that improve nerve cell survival and might help treat Charcot-Marie-Tooth disease type 2A (CMT2A), according to a press release from ... Read more

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September 22, 2017September 22, 2017

Despite Functional Limitations, Few CMT Patients Receive Physical and Occupational Therapy

News

Most people with Charcot-Marie-Tooth (CMT) disease do not receive physical or occupational therapy, despite having extensive problems with physical functioning that limit mobility and quality of life, according to a report presented at the American Association of Neuromuscular & ... Read more

Updates

‘The Christmas Bow’ Hits the Mark With Its Depiction of CMT

Ancora Funding Vanderbilt Research Into Potential CMT Treatments

Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry

Reconnecting With Nature

Drug Screen Finds Dozens of Potential Therapeutic Compounds for CMT2A

Subscribe to our mailing list

Survey: Restricted Physical Activity Affected CMT Patients During COVID-19 Lockdowns

Sometimes I Struggle to Find the Right Words to Describe CMT

App-based Study Seeks Real-world Data on the Personal Impact of CMT

NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits

Learning to Actively Pursue the Light at the End of the Tunnel

Functional Surgery Can Improve Walking Ability in People With CMT, Study Finds

CMT Research Foundation to Develop Precision Medicine Approach for Subtypes

UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner

CMT UK Offering Video Series of Exercises for Home Use

A Spa Trip Reminded Me of the Importance of Being Present

Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say

Functional Loss in CMT1A Patients May Cause Brain to Reorganize, Study Indicates

Playing Piano Helps My Fingers Stay Active

Curcumin Particles Show Potential to Ease Symptoms in CMT1A Rat Model

Bioinformatics Study Identifies 30 New Genes Potentially Involved in CMT

Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos

Scientists Discover Potential Therapeutic Target for CMT in Mouse Study

CMT&Me Launches Global Fundraising Contest for CMT Awareness Month in Europe

Finding a Cure for CMT Won’t Stop Ableism

DTx Pharma Receives NIH Funding to Advance RNA-based Therapies for CMT

3 New GJB1 Mutations Found in Chinese Patients That Could Cause CMTX1

New HDAC6 Inhibitor Shows Myelination Potential in CMT1A Models

DST Gene Mutations Also Can Cause CMT Type 2, Study Finds

I’m Rediscovering the Mental and Emotional Benefits of Exercise

CMT1A Patients Needed for Study Seeking New Ways to Monitor Disease Progression

Despite Functional Limitations, Few CMT Patients Receive Physical and Occupational Therapy