A new set of recommendations offers guidance on how to design clinical trials for potential treatments for Charcot-Marie-Tooth disease (CMT), emphasizing a need for flexible approaches that can accommodate the disease’s many subtypes and the importance of incorporating input from the CMT community. The recommendations were developed by a…
Discussion
Because of my Charcot-Marie-Tooth disease (CMT), I’ve sat with more neurologists, researchers, orthotists, and physical therapists than many of my peers. I’ve also had to self-advocate when navigating the healthcare system in ways few of my able-bodied peers need to. And I’m familiar with the sense of isolation that…
Becoming educated and informed about Charcot-Marie-Tooth disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CMT journey.
There is no cure for CMT yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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