My name is Amanda Knightly, but the internet knows me as Misa on Wheels. I got this name at my first anime convention nearly two decades ago, while cosplaying as Misa from the popular anime series “Death Note.” One of the fellow attendees I met that…
Discussion
Last in a series. Read part one. Previously, I shared part of my conversation with disability advocates Lily Sander, a Muscular Dystrophy Association (MDA) National Ambassador and person with Charcot-Marie-Tooth disease (CMT) type 1E and hereditary neuropathy with liability to pressure palsies; and…
Becoming educated and informed about Charcot-Marie-Tooth disease is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnists’ words of wisdom to help you along on your CMT journey.
There is no cure for CMT yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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