CMT and Me — Jill Price

The other day, I had to climb the bleachers at my son’s high school. I admit the prospect scared me a little, not only because of the height factor but also because there weren’t adequate railings for…

At my son’s Individualized Education Program meeting, the team asked what accommodations he requires due to Charcot-Marie-Tooth disease. He has little impact from CMT, with the biggest issue being motor dysgraphia. This is a…

Someone asked me what I miss the most since being diagnosed with Charcot-Marie-Tooth disease (CMT). I had to think hard about it, as I’ve had CMT for as long as I can remember. Has it always…

I recently realized that I have had no lower back pain for a few weeks. Wow! I am almost afraid to say anything, in fear I might jinx it. I typically suffer from pain in my…

The other day, I went to a class to learn about using essential oils. I know that these plant substances have health benefits and I was curious to see if they could help with some of…

I saw something about invisible disabilities the other day. To me, that means a chronic illness that has flare-ups or any type of disorder that you cannot really see. I have heard people say that Charcot-Marie-Tooth…

Over a year ago, my dear friend told me that she planned to get married on the beach. I must admit, I was a little concerned about going to her wedding. Then, she told me…

Snow. It sure looks pretty unless you have a disability. I love to watch the snow fall; add a hot drink and a good book, and I am happy until I need to venture outside. Winter is…

The past year was packed with ups and downs that taught me numerous lessons about how to navigate my journey with Charcot-Marie-Tooth (CMT). I learned much about myself, this crazy disease, and how it affects my life. In…

A crazy idea came to me early one morning when I couldn’t sleep: Find or start a support group for women with disabilities. While there are many online communities, there are few in-person support groups for women…

Holidays and stress seem to go hand in hand! The shopping, cooking, and travel can lead to pressure at this time of year. I love the holidays and spending time with family and friends. However, I do…

I was telling a new doctor that I have Charcot-Marie-Tooth (CMT) disease, and he gave me a funny look. He asked me to repeat the name. I did and gave him a very brief explanation. Then…