September is Charcot-Marie-Tooth (CMT) Awareness Month, a great time to bring attention to this little-known disease. I have CMT1A and wear ankle-foot orthoses (AFOs). Many of my family members suffer from the disease, as well. However, there’s more to us than our disease. To educate others about CMT, I…
CMT and Me — Jill Price
Jill was diagnosed with CMT 1A at the age of 2. She is a fourth-grade teacher and mom to a teenage son, who also has CMT. Jill loves photography, travel, and spending time with family and friends. She researches and writes tips that make life with disability a little easier.
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Recently, I joined a photography group for moms, and with them, I’ve been learning new techniques to feed my passion. However, there are times that I find these techniques difficult due to Charcot-Marie-Tooth (CMT). My hands sometimes shake which makes the photo blurry, or I hit the shutter too soon…
Apparently, magnesium is the latest miracle substance. It can supposedly help with many different ailments, from muscle pain to anxiety and sleeplessness. This makes me wonder whether it can help with the symptoms of Charcot-Marie-Tooth (CMT). Magnesium plays an important role in how our bodies work. Among other…
September is CMT Awareness Month in the United States — a dedicated time to share and educate others about Charcot-Marie-Tooth (CMT). CMT is one of the most commonly inherited neurological disorders, affecting approximately 1 in 2,500 people in the U.S., according to the National Institute of Neurological Disorders…
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Back-to-school Tips and Tricks
I love fall and the start of the new school year. It’s when I return to teaching and readjust to a routine of work, school, and activities. But summer’s end can be overwhelming, and even more so with a disability. I have Charcot-Marie-Tooth disease and am finding some aspects…
For the first time, I posted a picture of me with my cane and braces on social media. And guess what? No one even noticed. This is a big deal. I talk about Charcot-Marie-Tooth (CMT) and my ankle-foot orthoses, but showing the world is scary. People can be cruel…
I am not fashion-savvy and don’t really follow the latest trends. However, I enjoy scrolling through Instagram to see the latest fashion blogs. I love to look at the cute outfits but quickly realize that I can’t wear them. These fashion influencers and bloggers are fun to follow and…
It’s going to rain today! I can tell because the pain in my joints tells me. Does your body hurt when the weather changes? Can you feel that it is going to rain even before you hear the weather report? If so, you are not alone. Is there a scientific…
“Are those rattlesnake protectors?” I am getting used to the stares and comments about my ankle-foot orthoses (AFOs), but this one kind of threw me for a loop. I just looked at the gentleman for a minute before I realized he was talking about my Arizona Braces. My not-so-thought-out…
Clothes shopping stresses me out! Stores and malls are not designed for those of us with disabilities, so I really dread visiting them. Due to Charcot-Marie-Tooth disease, I wear ankle-foot orthoses, which make trying on clothes 10 times more difficult. Often, the dressing rooms are small, so taking…
“Progress over perfection.” Someone said this to me the other day when talking about weight loss. I began to think about how this idea can apply to my life. I have Charcot-Marie-Tooth disease and wear ankle-foot orthoses. In many ways, this makes being perfect nearly impossible. My gait…
I love summer, but I also hate it. I love the warmer weather and being able to be outside more, but that can be problematic for me. I have Charcot-Marie-Tooth disease and wear ankle-foot orthoses, which make normal summer activities a little more difficult. I love the beach, but…
Some days, I feel overwhelmed by the symptoms of Charcot-Marie-Tooth disease (CMT), but I never feel like giving up. I know that having a disability or chronic illness can take a toll on one’s physical and emotional state. Lately, I have been seeing many people posting in online communities…
Recent Posts
- CMT patient advocate to be honored by MDA for helping advance research January 15, 2026
- Rare mutation drives woman’s unusual CMT symptoms: Report December 11, 2025
- Ankle, foot surgery allows adults with CMT to achieve personal goals November 13, 2025
- Existing in the tension between thoughts and actions, part 2 November 11, 2025
- Existing in the tension between thoughts and actions, part 1 October 21, 2025
- Partners team up for long-awaited trial of CMT4J gene therapy October 8, 2025
- Advocates aim to raise visibility of CMT during Awareness Month September 10, 2025
- In youth fitness programs, inclusion is the key September 9, 2025
- Zeus KAFO brace aims to support mobility in CMT, other conditions August 13, 2025
- Unraveling the Gordian knot of sleep issues and CMT health July 31, 2025
