CMT and Me — Jill Price

September is Charcot-Marie-Tooth (CMT) Awareness Month, a great time to bring attention to this little-known disease. I have CMT1A and wear ankle-foot orthoses (AFOs). Many of my family members suffer from the disease, as well. However, there’s more…

Apparently, magnesium is the latest miracle substance. It can supposedly help with many different ailments, from muscle pain to anxiety and sleeplessness. This makes me wonder whether it can help with the symptoms of Charcot-Marie-Tooth (CMT). Magnesium…

September is CMT Awareness Month in the United States — a dedicated time to share and educate others about Charcot-Marie-Tooth (CMT). CMT is one of the most commonly inherited neurological disorders, affecting approximately 1 in 2,500 people…

I love fall and the start of the new school year. It’s when I return to teaching and readjust to a routine of work, school, and activities. But summer’s end can be overwhelming, and even more so with a…

For the first time, I posted a picture of me with my cane and braces on social media. And guess what? No one even noticed. This is a big deal. I talk about Charcot-Marie-Tooth (CMT) and my ankle-foot…

I am not fashion-savvy and don’t really follow the latest trends. However, I enjoy scrolling through Instagram to see the latest fashion blogs. I love to look at the cute outfits but quickly realize that I can’t wear them.

It’s going to rain today! I can tell because the pain in my joints tells me. Does your body hurt when the weather changes? Can you feel that it is going to rain even before you hear the weather…

“Are those rattlesnake protectors?” I am getting used to the stares and comments about my ankle-foot orthoses (AFOs), but this one kind of threw me for a loop. I just looked at the gentleman for a minute before I…

Clothes shopping stresses me out! Stores and malls are not designed for those of us with disabilities, so I really dread visiting them. Due to Charcot-Marie-Tooth disease, I wear ankle-foot orthoses, which make trying on clothes 10…

“Progress over perfection.” Someone said this to me the other day when talking about weight loss. I began to think about how this idea can apply to my life. I have Charcot-Marie-Tooth disease and wear ankle-foot orthoses.

I love summer, but I also hate it. I love the warmer weather and being able to be outside more, but that can be problematic for me. I have Charcot-Marie-Tooth disease and wear ankle-foot orthoses, which make normal…

Some days, I feel overwhelmed by the symptoms of Charcot-Marie-Tooth disease (CMT), but I never feel like giving up. I know that having a disability or chronic illness can take a toll on one’s physical and emotional state.