I have days when I cannot catch my breath. I may not be exercising or doing something strenuous when this…
Jill Price
Jill was diagnosed with CMT 1A at the age of 2 . She is a fourth-grade teacher and mom to a teenage son, who also has CMT. Jill loves photography, travel, and spending time with family and friends. She researches and writes tips that make life with disability a little easier.
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Articles by Jill Price
Growing up with Charcot-Marie-Tooth disease, I had no idea that other people — including celebrities — might have it. I…
It’s hard to believe that we are in a new decade. I have grown and changed so much in the…
Meeting a new neurologist is always an adventure. My son and I recently had our annual appointments at the…
A Good Boot Is Hard to Find
Winter brings cold, wet weather. That means it’s time to begin the search for winter boots. I dread shoe shopping,…
Weighing in on Weighted Blankets
Sleep issues are not uncommon for Charcot-Marie-Tooth (CMT) patients: obstructive sleep apnea and restless leg syndrome have been…
Someone asked whether males are more severely affected by Charcot-Marie-Tooth (CMT). I thought about how this seems to be true…
My sweet cat, Shadow, hasn’t left my side in days. I have been experiencing increased joint and muscle pain due…
Ugh! I twisted my arm, and now I need to see a specialist. Several years ago, I fell off my…
Things That Make Me Go ‘Hmmm’
Listening to the song “Things That Make You Go Hmmm” by C+c Music Factory got my wheels turning. There…