CMT and Me – a Column by Jill Price

April 15, 2019April 11, 2019

The Physical Binds of CMT Have Left Me Feeling Excluded

CMT and Me - a Column by Jill Price, Columns

This week at Friday night services, my rabbi’s sermon was about the Torah portion Leviticus 14:1-15:33 and how people were excluded because of illness. He spoke about the isolation ... Read more

April 8, 2019April 4, 2019

Finding a New Doctor with CMT

CMT and Me - a Column by Jill Price, Columns

When you have a chronic illness, finding a doctor who is knowledgeable about your condition can be a long process. Depending on your disease it may be difficult to ... Read more

April 1, 2019March 29, 2019

A Letter to My Younger Self: ‘CMT Doesn’t Define You’

CMT and Me - a Column by Jill Price, Columns

I heard Brad Paisley’s “Letter to Me” the other day. It got me thinking about what I would tell my younger self about growing up with Charcot-Marie-Tooth (CMT) 1a. Dear ... Read more

March 25, 2019March 21, 2019

What Ableism Looks Like to a Person with CMT

CMT and Me - a Column by Jill Price, Columns

Ableism is discrimination or prejudice against people with disabilities. It can occur in many ways — some ways subtle and others overt. A person with a disability may experience ... Read more

March 18, 2019March 15, 2019

Maintaining a Positive Body Image

CMT and Me - a Column by Jill Price, Columns

The Center for Eating Disorders defines body image as the “subjective picture or mental image of one’s own body.” It is how one feels about their body, and can ... Read more

March 11, 2019March 8, 2019

Navigating the Bleachers at My Son’s School Was Worth the Effort

CMT and Me - a Column by Jill Price, Columns

The other day, I had to climb the bleachers at my son’s high school. I admit the prospect scared me a little, not only because of the height factor ... Read more

March 7, 2019March 6, 2019

What Accommodations Are Available to Help My Son in School?

CMT and Me - a Column by Jill Price, Columns

At my son’s Individualized Education Program meeting, the team asked what accommodations he requires due to Charcot-Marie-Tooth disease. He has little impact from CMT, with the biggest issue being ... Read more

February 25, 2019February 21, 2019

What I Miss the Most

CMT and Me - a Column by Jill Price, Columns

Someone asked me what I miss the most since being diagnosed with Charcot-Marie-Tooth disease (CMT). I had to think hard about it, as I’ve had CMT for as long ... Read more

February 18, 2019February 14, 2019

Wow! I Have No Pain for a Change

CMT and Me - a Column by Jill Price, Columns

I recently realized that I have had no lower back pain for a few weeks. Wow! I am almost afraid to say anything, in fear I might jinx it. ... Read more

February 11, 2019February 7, 2019

I’m Using Essential Oils to Help with My Symptoms of Charcot-Marie-Tooth

CMT and Me - a Column by Jill Price, Columns

The other day, I went to a class to learn about using essential oils. I know that these plant substances have health benefits and I was curious to see ... Read more

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