CMT and Me – a Column by Jill Price

Jill was diagnosed with CMT 1A at the age of 2. She is a fourth-grade teacher and mom to a teenage son, who also has CMT. Jill loves photography, travel, and spending time with family and friends. She researches and writes tips that make life with disability a little easier.

June 22, 2020June 19, 2020

Tips for Photography Enthusiasts with Disabilities

CMT and Me - a Column by Jill Price, Columns

Recently, I joined a photography group for moms, and with them, I’ve been learning new techniques to feed my passion. However, there are times that I find these techniques difficult ... Read more

May 18, 2020May 15, 2020

It’s Time to Be Gentler with Myself

CMT and Me - a Column by Jill Price, Columns

A few months ago, I was at a photography club meeting and the leader reminded us to be gentle with ourselves. The comment really hit home. I know the benefits ... Read more

April 20, 2020April 16, 2020

How Charcot-Marie-Tooth Is Helping Me Cope with the Pandemic

CMT and Me - a Column by Jill Price, Columns

In Virginia, we are entering our second month of social distancing. We have a long way to go, but we are learning to adjust. My state has been given the ... Read more

March 16, 2020March 12, 2020

Having a Child Was the Right Decision for Me

CMT and Me - a Column by Jill Price, Columns

“Would you have had children if you knew they would have Charcot-Marie-Tooth?” I have heard this question before from friends and acquaintances when I told them about Charcot-Marie-Tooth disease (CMT). ... Read more

March 2, 2020February 27, 2020

These Gadgets Can Make Everyday Tasks Easier with CMT

CMT and Me - a Column by Jill Price, Columns

On some days, I find carrying out everyday tasks harder than on others. I don’t always want to rely on my son or someone else to help me do these ... Read more

February 24, 2020February 21, 2020

Is Seasonal Affective Disorder Worsening My CMT Symptoms?

CMT and Me - a Column by Jill Price, Columns

Do you struggle with a lack of motivation this time of year? I do, and it seems to be affecting my Charcot-Marie-Tooth (CMT) symptoms. I find that my CMT symptoms ... Read more

February 10, 2020February 6, 2020

Exercise Is Good for Us, So Let’s Get Moving!

CMT and Me - a Column by Jill Price, Columns

“Movement is medicine.” I have heard this saying a few times, and I wondered what it was about. Years ago, doctors typically told Charcot-Marie-Tooth (CMT) patients that exercise is not ... Read more

February 3, 2020January 30, 2020

Daddy Taught Me These Lessons About Life and CMT

CMT and Me - a Column by Jill Price, Columns

“Why does your dad walk like that?” a friend once asked me. At the time, I hadn’t even noticed. He had always walked that way. I knew we had Charcot-Marie-Tooth ... Read more

January 27, 2020January 23, 2020

Oh, No! I Have to Go Again!

CMT and Me - a Column by Jill Price, Columns

Do you ever have to rush to the bathroom? Are there times when you feel you cannot control the urge? Or perhaps you urinate frequently — more than eight times ... Read more