I was telling a new doctor that I have Charcot-Marie-Tooth (CMT) disease, and he gave me a funny look. He asked me to repeat the name. I did and ... Read more
As the holiday season approaches, so does the opportunity to travel. However, traveling with a disability can be more difficult and require additional planning. Many websites are available to ... Read more
What do I wish I knew about Charcot-Marie-Tooth disease (CMT) when I was younger? That other people have it, too. I have had CMT as long as I can ... Read more
I have an ongoing concern: My feet are cold all of the time! The temperature outdoors can be 90 degrees, yet my feet still will be ice-cold. They are ... Read more
I’ll be frank about how I’m feeling about my disease. Lately, I have been struggling with feeling overwhelmed about Charcot-Marie-Tooth disease (CMT). I don’t usually let CMT get to me. ... Read more
I have AFO woes … again. I am becoming very frustrated with my ankle-foot orthoses. They may be better for my ankles, but what good are they if they ... Read more
I used too many spoons today. I will pay for it tomorrow. According to the “spoon theory,” I have a limited number of spoons to use each day. Spoons ... Read more
This week, I really did not like this disease. I have Charcot-Marie-Tooth disease type 1A, and for some reason this week was a rough one. I fell twice. Thankfully, ... Read more
Two months ago, I had an interesting conversation with my eye doctor while she looked at photos of my eyes. “Do you have joint pain?” Yes, I have chronic ... Read more
Mom guilt will always get you. Why do I feel guilty when I cannot do something or be somewhere for my son? It’s probably because society has this ideal ... Read more
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