CMT and Me – a Column by Jill Price

April 20, 2020April 16, 2020

How Charcot-Marie-Tooth Is Helping Me Cope with the Pandemic

CMT and Me - a Column by Jill Price, Columns

In Virginia, we are entering our second month of social distancing. We have a long way to go, but we are learning to adjust. My state has been given ... Read more

March 16, 2020March 12, 2020

Having a Child Was the Right Decision for Me

CMT and Me - a Column by Jill Price, Columns

“Would you have had children if you knew they would have Charcot-Marie-Tooth?” I have heard this question before from friends and acquaintances when I told them about Charcot-Marie-Tooth disease ... Read more

March 2, 2020February 27, 2020

These Gadgets Can Make Everyday Tasks Easier with CMT

CMT and Me - a Column by Jill Price, Columns

On some days, I find carrying out everyday tasks harder than on others. I don’t always want to rely on my son or someone else to help me do ... Read more

February 24, 2020February 21, 2020

Is Seasonal Affective Disorder Worsening My CMT Symptoms?

CMT and Me - a Column by Jill Price, Columns

Do you struggle with a lack of motivation this time of year? I do, and it seems to be affecting my Charcot-Marie-Tooth (CMT) symptoms. I find that my CMT ... Read more

February 10, 2020February 6, 2020

Exercise Is Good for Us, So Let’s Get Moving!

CMT and Me - a Column by Jill Price, Columns

“Movement is medicine.” I have heard this saying a few times, and I wondered what it was about. Years ago, doctors typically told Charcot-Marie-Tooth (CMT) patients that exercise is ... Read more

February 3, 2020January 30, 2020

Daddy Taught Me These Lessons About Life and CMT

CMT and Me - a Column by Jill Price, Columns

“Why does your dad walk like that?” a friend once asked me. At the time, I hadn’t even noticed. He had always walked that way. I knew we had ... Read more

January 27, 2020January 23, 2020

Oh, No! I Have to Go Again!

CMT and Me - a Column by Jill Price, Columns

Do you ever have to rush to the bathroom? Are there times when you feel you cannot control the urge? Or perhaps you urinate frequently — more than eight ... Read more

January 20, 2020January 16, 2020

Can Charcot-Marie-Tooth Affect Breathing?

CMT and Me - a Column by Jill Price, Columns

I have days when I cannot catch my breath. I may not be exercising or doing something strenuous when this happens. It can happen after walking around a store ... Read more

January 13, 2020January 10, 2020

Celebrities with CMT Help to Raise Awareness

CMT and Me - a Column by Jill Price, Columns

Growing up with Charcot-Marie-Tooth disease, I had no idea that other people — including celebrities — might have it. I rarely heard of a celebrity with a disability when ... Read more

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