CMT and Me – a Column by Jill Price

April 23, 2018April 20, 2018

What I Am and What I Am Not

CMT and Me - a Column by Jill Price, Columns

Today, I sat in a cultural proficiency teacher training designed to raise awareness of cultural differences and stereotypes.  The class did an exercise in which we filled in the ... Read more

April 16, 2018April 13, 2018

Shoes Are Not Always My Friend

CMT and Me - a Column by Jill Price, Columns

Shoes. Most women have a closet full of them. Most women love to go shoe shopping and get the latest, cutest trend. Not me. I truly hate shoe shopping ... Read more

April 9, 2018April 6, 2018

Creating Balance to Ward Off Anxiety

CMT and Me - a Column by Jill Price, Columns

I have been told by many that stress can exacerbate the symptoms of Charcot-Marie-Tooth, and when I am stressed, anxious, or feeling overwhelmed, my symptoms are worse. So, I’m ... Read more

April 2, 2018March 29, 2018

‘To Travel Is to Live’

CMT and Me - a Column by Jill Price, Columns

I love to travel. Traveling is tough enough to begin with, and adding in physical conditions like Charcot-Marie-Tooth doesn’t exactly make things easier. But this past summer, I took ... Read more

March 26, 2018March 22, 2018

Continuing My AFO Journey

CMT and Me - a Column by Jill Price, Columns

It has been almost three months since I received my ankle-foot orthosis braces (AFOs), and I am finally learning to accept them. I have been wearing them almost all ... Read more

March 19, 2018March 16, 2018

Oh, What a Pain!

CMT and Me - a Column by Jill Price, Columns

I woke up and could barely get out of bed. My right hip was throbbing and the pain radiated through my sacroiliac joint (SI joint). The pain is caused ... Read more

March 12, 2018March 9, 2018

What Accommodations Are There?

CMT and Me - a Column by Jill Price, Columns

Ever have one of those days when you drop everything you touch and trip over everything? That was my day recently. I even tripped over my students. I am a ... Read more

March 5, 2018March 2, 2018

Navigating the Confusing Information Online Regarding Supplements

CMT and Me - a Column by Jill Price, Columns

There is so much conflicting research online about supplements that can help relieve the symptoms of Charcot-Marie-Tooth disease (CMT). How do I know which is valid and which is just hype? ... Read more

February 26, 2018February 22, 2018

The Thoughts that Keep Me Up at Night

CMT and Me - a Column by Jill Price, Columns

What keeps you up at night? For me, it’s recently been the idea of “run, hide, fight,” which is survival advice for when there is an active shooter. Those ... Read more

February 19, 2018February 16, 2018

Taking Big Steps in My CMT Journey

CMT and Me - a Column by Jill Price, Columns

“Those who have known you for years love you for what is between your ears, not what is on your ankles.” A dear friend said that to me the ... Read more