CMT and Me – a Column by Jill Price

January 13, 2020January 10, 2020

Celebrities with CMT Help to Raise Awareness

CMT and Me - a Column by Jill Price, Columns

Growing up with Charcot-Marie-Tooth disease, I had no idea that other people — including celebrities — might have it. I rarely heard of a celebrity with a disability when ... Read more

January 6, 2020January 2, 2020

What I Learned Over the Last Decade

CMT and Me - a Column by Jill Price, Columns

It’s hard to believe that we are in a new decade. I have grown and changed so much in the last 10 years. Looking back, I am amazed at ... Read more

December 16, 2019December 12, 2019

It’s OK to Have a Bad Day Now and Then

CMT and Me - a Column by Jill Price, Columns

Meeting a new neurologist is always an adventure. My son and I recently had our annual appointments at the Johns Hopkins Charcot-Marie-Tooth (CMT) Center in Baltimore. Our appointments were ... Read more

December 9, 2019December 5, 2019

A Good Boot Is Hard to Find

CMT and Me - a Column by Jill Price, Columns

Winter brings cold, wet weather. That means it’s time to begin the search for winter boots. I dread shoe shopping, and I probably dread boot shopping even more. Because ... Read more

December 2, 2019November 26, 2019

Weighing in on Weighted Blankets

CMT and Me - a Column by Jill Price, Columns

Sleep issues are not uncommon for Charcot-Marie-Tooth (CMT) patients: obstructive sleep apnea and restless leg syndrome have been associated with CMT1. Fatigue is my most frustrating symptom, so I ... Read more

November 25, 2019November 21, 2019

Does CMT Inheritance Pattern Make Male Symptoms Worse?

CMT and Me - a Column by Jill Price, Columns

Someone asked whether males are more severely affected by Charcot-Marie-Tooth (CMT). I thought about how this seems to be true in my family. I have CMT type 1A, as ... Read more

November 18, 2019November 14, 2019

Me-ow! Can My Cat’s Purr Help with CMT Joint and Muscle Pain?

CMT and Me - a Column by Jill Price, Columns

My sweet cat, Shadow, hasn’t left my side in days. I have been experiencing increased joint and muscle pain due to my Charcot-Marie-Tooth (CMT) and changes in the weather, ... Read more

November 11, 2019November 7, 2019

CMT and Bone Density Loss: Is There a Connection?

CMT and Me - a Column by Jill Price, Columns

Ugh! I twisted my arm, and now I need to see a specialist. Several years ago, I fell off my bike and dislocated my right elbow, and I still ... Read more

November 4, 2019October 31, 2019

Things That Make Me Go ‘Hmmm’

CMT and Me - a Column by Jill Price, Columns

Listening to the song “Things That Make You Go Hmmm” by C+c Music Factory got my wheels turning. There are times when I wonder what in the world people ... Read more

October 28, 2019October 24, 2019

Taking Steps: Learn to Manage Crowds

CMT and Me - a Column by Jill Price, Columns

I was recently reminded why I avoid the grocery store on a Sunday morning: the crowds! I find it difficult to navigate a crowded store, especially when there are ... Read more

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