CMT and Me – a Column by Jill Price

June 18, 2018June 14, 2018

Finding the Right Exercise Routine

CMT and Me - a Column by Jill Price, Columns

How should I exercise? Which activity is best for me to do? Those are always repeated questions when you have a chronic progressive disorder. I have Charcot-Marie-Tooth. I would ... Read more

June 11, 2018June 7, 2018

CMT and the Importance of Being an Advocate for Myself

CMT and Me - a Column by Jill Price, Columns

It’s been a week of firsts for me. It was an overwhelming week in many ways, although I did learn a few things along the way about myself and ... Read more

June 4, 2018May 31, 2018

When Household Chores Become Too Much with CMT

CMT and Me - a Column by Jill Price, Columns

I cleaned the bathroom yesterday and it now shines and looks and smells great. The downside? I needed a nap after cleaning the tiny room. I am slowly finding ... Read more

May 21, 2018May 18, 2018

Throughout My CMT Journey, My Mom Has Been My Biggest Supporter

CMT and Me - a Column by Jill Price, Columns

One person has stood by my side through it all. This person supports me in everything I do, even if she doesn’t agree with my decisions. She is there ... Read more

May 14, 2018May 10, 2018

Trying Out Physical Therapy with CMT

CMT and Me - a Column by Jill Price, Columns

I did not realize physical therapy could be such an adventure. WOW. Not only was it informative but it was also a workout! Boy, my muscles ached after the ... Read more

May 7, 2018May 4, 2018

CMT Might Have Given Me Hearing Loss

CMT and Me - a Column by Jill Price, Columns

“Can you repeat that?” “I am sorry, but I cannot hear you, please speak louder.” I am saying these things more often than I used to. It is worse ... Read more

April 30, 2018April 27, 2018

To Tell or Not to Tell? That Is the Question

CMT and Me - a Column by Jill Price, Columns

“To tell or not to tell people about my disability?” That is always the question. When I meet someone, how do I know how they will react to my ... Read more

April 23, 2018April 20, 2018

What I Am and What I Am Not

CMT and Me - a Column by Jill Price, Columns

Today, I sat in a cultural proficiency teacher training designed to raise awareness of cultural differences and stereotypes.  The class did an exercise in which we filled in the ... Read more

April 16, 2018April 13, 2018

Shoes Are Not Always My Friend

CMT and Me - a Column by Jill Price, Columns

Shoes. Most women have a closet full of them. Most women love to go shoe shopping and get the latest, cutest trend. Not me. I truly hate shoe shopping ... Read more

April 9, 2018April 6, 2018

Creating Balance to Ward Off Anxiety

CMT and Me - a Column by Jill Price, Columns

I have been told by many that stress can exacerbate the symptoms of Charcot-Marie-Tooth, and when I am stressed, anxious, or feeling overwhelmed, my symptoms are worse. So, I’m ... Read more