CMT and Me – a Column by Jill Price

August 20, 2018August 16, 2018

A CMT Tattoo Has Taught Me About the Value of True Friendship

CMT and Me - a Column by Jill Price, Columns

How do you know you are important to people? What is a sign that you are not only loved but really important to them? The other day, my dearest ... Read more

August 13, 2018August 9, 2018

My AFO Saga Continues

CMT and Me - a Column by Jill Price, Columns

In my continuing ankle-foot orthosis journey, I picked up my new AFO for my left foot. It has been a very different experience from where I started this journey. ... Read more

August 6, 2018August 2, 2018

Dealing with My Son’s CMT

CMT and Me - a Column by Jill Price, Columns

My 14-year-old son has Charcot-Marie-Tooth disease, but you would never know it. He is an active, adventurous, and goofy teenager who does not let CMT stop him from doing ... Read more

July 30, 2018July 26, 2018

I Don’t View CMT As a Struggle. Here’s Why.

CMT and Me - a Column by Jill Price, Columns

“I appreciate the struggle. I have mobility issues, too.” A person I had just met said this to me one day. I was uncertain about what she meant. Did ... Read more

July 23, 2018July 19, 2018

Can Having a Growth Mindset Help with Charcot-Marie-Tooth Disease?

CMT and Me - a Column by Jill Price, Columns

Lately, I have been doing a lot of reading about mindsets. I am taking an online class about how mindset impacts our learning. It’s about how by changing what ... Read more

July 16, 2018July 12, 2018

Summer Is for Wearing Shorts

CMT and Me - a Column by Jill Price, Columns

“What did you do to yourself?” That was the first thing the saleswoman at the dress shop said to me before she even said hello. I was taken aback ... Read more

July 9, 2018July 9, 2018

When Communicating with Your Doctor, It’s Important to Detail All Symptoms for a Diagnosis

CMT and Me - a Column by Jill Price, Columns

Have you ever had a headache so severe that all you can do is stay in bed? The kind in which every sound and bright light sends ripples of ... Read more

July 2, 2018June 28, 2018

Complicated Decisions to Make About My Hammertoe Surgery

CMT and Me - a Column by Jill Price, Columns

It was a busy week of doctor appointments — and decisions. First, I went to see my new orthotist. I’m so glad I decided to speak up about how ... Read more

June 25, 2018June 21, 2018

Summer Is a Time to Recharge

CMT and Me - a Column by Jill Price, Columns

Why is summer break so important? Because teaching is tough and exhausting. Throw in a physical disability like Charcot Marie-Tooth, and it is even more challenging. People often ask ... Read more

June 18, 2018June 14, 2018

Finding the Right Exercise Routine

CMT and Me - a Column by Jill Price, Columns

How should I exercise? Which activity is best for me to do? Those are always repeated questions when you have a chronic progressive disorder. I have Charcot-Marie-Tooth. I would ... Read more