CMT and Me – a Column by Jill Price

October 15, 2018October 12, 2018

Living with CMT Is Not Always Easy

CMT and Me - a Column by Jill Price, Columns

This week, I really did not like this disease. I have Charcot-Marie-Tooth disease type 1A, and for some reason this week was a rough one. I fell twice. Thankfully, ... Read more

October 8, 2018October 5, 2018

Can a Gluten-free Diet Help with CMT-related Pain?

CMT and Me - a Column by Jill Price, Columns

Two months ago, I had an interesting conversation with my eye doctor while she looked at photos of my eyes. “Do you have joint pain?” Yes, I have chronic ... Read more

October 1, 2018September 27, 2018

Mom Guilt is Worsened by CMT

CMT and Me - a Column by Jill Price, Columns

Mom guilt will always get you. Why do I feel guilty when I cannot do something or be somewhere for my son? It’s probably because society has this ideal ... Read more

September 24, 2018September 20, 2018

There’s No Need to Apologize

CMT and Me - a Column by Jill Price, Columns

I constantly say sorry by instinct and without reason. I’ve even been apologizing for my disability. No more apologies! I have Charcot-Marie-Tooth disease Type 1A and I wear ankle-foot orthoses (AFOs) ... Read more

September 17, 2018September 14, 2018

I Can Be Both Disabled and Happy

CMT and Me - a Column by Jill Price, Columns

The other day, I watched a video about the late Claire Wineland. In it, she said many people believe that if someone is sick or disabled, they must be ... Read more

September 10, 2018September 7, 2018

What Does ‘Fair’ Mean?

CMT and Me - a Column by Jill Price, Columns

“Fair does not mean equal.” I always start the school year by teaching my class that concept. I start by giving each student a paper with the name of ... Read more

August 27, 2018August 23, 2018

I Graduated from Physical Therapy

CMT and Me - a Column by Jill Price, Columns

I was released from physical therapy, finally! Don’t get me wrong, I liked my physical therapist, even though he made me work hard during our 45 minutes together each ... Read more

August 20, 2018August 16, 2018

A CMT Tattoo Has Taught Me About the Value of True Friendship

CMT and Me - a Column by Jill Price, Columns

How do you know you are important to people? What is a sign that you are not only loved but really important to them? The other day, my dearest ... Read more

August 13, 2018August 9, 2018

My AFO Saga Continues

CMT and Me - a Column by Jill Price, Columns

In my continuing ankle-foot orthosis journey, I picked up my new AFO for my left foot. It has been a very different experience from where I started this journey. ... Read more

August 6, 2018August 2, 2018

Dealing with My Son’s CMT

CMT and Me - a Column by Jill Price, Columns

My 14-year-old son has Charcot-Marie-Tooth disease, but you would never know it. He is an active, adventurous, and goofy teenager who does not let CMT stop him from doing ... Read more

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