Columns

My Footprints Are Reminders of My Weakness

I leave strange footprints. Luckily, I usually walk on solid ground and don’t need to think about them. Most days, I only encounter paved streets and driveways, carpeted floors, and grassy fields. And I like that. After all, anything that can assist with stability is…

Things That Make Me Go ‘Hmmm’

Listening to the song “Things That Make You Go Hmmm” by C+c Music Factory got my wheels turning. There are times when I wonder what in the world people are thinking. I have Charcot-Marie-Tooth (CMT) and mobility issues. That means I use a cane at times and have a…

Thoughts on CMT and ‘Askew’

“Askew,” a work of art by American painter and sculptor Roxy Paine, stands just outside the West Building at the North Carolina Museum of Art. It’s an almost 50-foot, tree-like metal structure, with a trunk and…

Taking Steps: Learn to Manage Crowds

I was recently reminded why I avoid the grocery store on a Sunday morning: the crowds! I find it difficult to navigate a crowded store, especially when there are shopping carts and other items blocking the aisles. This is not only an issue at the grocery store. As my Charcot-Marie-Tooth…

Is a Treatment for CMT in the Works?

I burned my finger the other day. I didn’t feel it right away, which is not that odd of an occurrence for me. Often, I don’t feel the heat and don’t realize I have burned myself while cooking. I have Charcot-Marie-Tooth (CMT) type 1A, which may affect the feeling in…

It’s Time to Call CMT by Its Name

Tina Trahan said she was sitting in a parking lot in May 2015 when she cried out to God, asking him to give her cancer. Cancer, she thought, offered a greater chance of survival than what a neurologist had just told her she had —…

I’m Learning to Accept the Benefits of My Mobility Aids

I recently read an article in the Virginia Journal of Education that made me think about my feelings toward my mobility aids. The author, Kelly Hickok, is a wheelchair user, and she described how mobility aids give her a sense of freedom. She wrote, “We don’t view our wheelchairs…

Trying Meditation as a Form of Self-care

A high school Spanish teacher introduced me to the practice of meditation. A few times a semester, he would begin or end his class with it. During these sessions, he would suggest that my classmates and I sit in a relaxed position, head on our desks or back straight, with…

Chronic Illness Makes Self-care Essential

I’ve been seeing a lot of articles on the importance of self-care. Self-care involves looking after your mental, physical, and emotional health. Self-care is not a new concept, but it seems to be increasingly popular, maybe because people are becoming more aware of the mind-body connection. As a…