“Chongxi.” It’s a Chinese term referring to the superstitious custom of trying to erase a misfortune by overriding it with a joyous event or feeling. I stumbled upon this phrase a few weeks ago when my parents and I were listening to an episode…
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I love fall and the start of the new school year. It’s when I return to teaching and readjust to a routine of work, school, and activities. But summer’s end can be overwhelming, and even more so with a disability. I have Charcot-Marie-Tooth disease and am finding some aspects…
For the first time, I posted a picture of me with my cane and braces on social media. And guess what? No one even noticed. This is a big deal. I talk about Charcot-Marie-Tooth (CMT) and my ankle-foot orthoses, but showing the world is scary. People can be cruel…
I am not fashion-savvy and don’t really follow the latest trends. However, I enjoy scrolling through Instagram to see the latest fashion blogs. I love to look at the cute outfits but quickly realize that I can’t wear them. These fashion influencers and bloggers are fun to follow and…
“If they’re really thinking about their audience, and if they provide water bottles, they’ll also have hand grips there,” my father said, as he drove my sister and I along familiar roads on our way to Whetstone Park — an old, beautiful community…
It’s going to rain today! I can tell because the pain in my joints tells me. Does your body hurt when the weather changes? Can you feel that it is going to rain even before you hear the weather report? If so, you are not alone. Is there a scientific…
I was the only Asian-American on my college study-abroad trip to China that year. I couldn’t speak much Mandarin at all, but still, I could recognize the absurdity when a classmate suggested I hold up the sign we created that said in Chinese, “Please point us in the…
“Are those rattlesnake protectors?” I am getting used to the stares and comments about my ankle-foot orthoses (AFOs), but this one kind of threw me for a loop. I just looked at the gentleman for a minute before I realized he was talking about my Arizona Braces. My not-so-thought-out…
A few days ago, I found myself searching online for Charcot-Marie-Tooth (CMT) memes. While my actions might seem a bit juvenile, I needed a laugh. I was also looking for some insight into the CMT community — this group of people to which I belong due to the nature…
In April 1977 more than 100 people with disabilities entered the Department of Health, Education, and Welfare (HEW) office in San Francisco and, in protest, they refused to leave. Three years prior, Congress had passed Section 504 of the Rehabilitation Act…
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