I burned my finger the other day. I didn’t feel it right away, which is not that odd of an occurrence for me. Often, I don’t feel the heat and don’t realize I have burned myself while cooking. I have Charcot-Marie-Tooth (CMT) type 1A, which may affect the feeling in…
Columns
Tina Trahan said she was sitting in a parking lot in May 2015 when she cried out to God, asking him to give her cancer. Cancer, she thought, offered a greater chance of survival than what a neurologist had just told her she had —…
I recently read an article in the Virginia Journal of Education that made me think about my feelings toward my mobility aids. The author, Kelly Hickok, is a wheelchair user, and she described how mobility aids give her a sense of freedom. She wrote, “We don’t view our wheelchairs…
A high school Spanish teacher introduced me to the practice of meditation. A few times a semester, he would begin or end his class with it. During these sessions, he would suggest that my classmates and I sit in a relaxed position, head on our desks or back straight, with…
I’ve been seeing a lot of articles on the importance of self-care. Self-care involves looking after your mental, physical, and emotional health. Self-care is not a new concept, but it seems to be increasingly popular, maybe because people are becoming more aware of the mind-body connection. As a…
September is CMT Awareness Month, and my social media feeds have been flooded with inspirational quotes and infographics related to Charcot-Marie-Tooth (CMT). It’s rare that one of these posts gives me information I hadn’t heard before, but one infographic caught me…
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There’s More to Me Than CMT
September is Charcot-Marie-Tooth (CMT) Awareness Month, a great time to bring attention to this little-known disease. I have CMT1A and wear ankle-foot orthoses (AFOs). Many of my family members suffer from the disease, as well. However, there’s more to us than our disease. To educate others about CMT, I…
“Maybe there will be others at the conference who will commiserate with me,” my sister said as we sat among our bags at gate B6 in Detroit’s Metro Airport. Despite being prechecked by the Transportation Security Administration hours earlier at John Glenn International in Columbus, Ohio, my sister…
Apparently, magnesium is the latest miracle substance. It can supposedly help with many different ailments, from muscle pain to anxiety and sleeplessness. This makes me wonder whether it can help with the symptoms of Charcot-Marie-Tooth (CMT). Magnesium plays an important role in how our bodies work. Among other…
September is CMT Awareness Month in the United States — a dedicated time to share and educate others about Charcot-Marie-Tooth (CMT). CMT is one of the most commonly inherited neurological disorders, affecting approximately 1 in 2,500 people in the U.S., according to the National Institute of Neurological Disorders…
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