Columns

Managing My Anxiety During the COVID-19 Pandemic

Are you feeling anxious about COVID-19 and its effects around the world? You are not alone. In these times of uncertainty, it’s natural to feel anxious. I, too, am a bit overwhelmed by the situation. We are in a unique time, and no one knows the best way to deal…

Having a Child Was the Right Decision for Me

“Would you have had children if you knew they would have Charcot-Marie-Tooth?” I have heard this question before from friends and acquaintances when I told them about Charcot-Marie-Tooth disease (CMT).  When I am asked, my answer is always the same and without hesitation: yes. I would have had my son…

Thinking About CMT and My Handwriting

A few years ago at a previous job, a co-worker confessed to me that she used to think I was a bit gross because she thought I had frequent nosebleeds and didn’t immediately throw my used tissues away. She had seen tissues stained a blood-red color strewn on…

I’m Alive and I Don’t Want to YOLO It Away

When I was in college, YOLO —  the acronym for “you only live once” — became popular. I think it was supposed to be inspirational, encouraging us to take advantage of our time and do something worthwhile. However noble the intention was, that’s not what it became. I…