Columns

Managing My Anxiety During the COVID-19 Pandemic

Are you feeling anxious about COVID-19 and its effects around the world? You are not alone. In these times of uncertainty, it’s natural to feel anxious. I, too, am a bit overwhelmed by the situation. We are in a unique time, and no one knows the best way to deal…

Having a Child Was the Right Decision for Me

“Would you have had children if you knew they would have Charcot-Marie-Tooth?” I have heard this question before from friends and acquaintances when I told them about Charcot-Marie-Tooth disease (CMT).  When I am asked, my answer is always the same and without hesitation: yes. I would have had my son…

Thinking About CMT and My Handwriting

A few years ago at a previous job, a co-worker confessed to me that she used to think I was a bit gross because she thought I had frequent nosebleeds and didn’t immediately throw my used tissues away. She had seen tissues stained a blood-red color strewn on…

I’m Alive and I Don’t Want to YOLO It Away

When I was in college, YOLO —  the acronym for “you only live once” — became popular. I think it was supposed to be inspirational, encouraging us to take advantage of our time and do something worthwhile. However noble the intention was, that’s not what it became. I…

Exercise Is Good for Us, So Let’s Get Moving!

“Movement is medicine.” I have heard this saying a few times, and I wondered what it was about. Years ago, doctors typically told Charcot-Marie-Tooth (CMT) patients that exercise is not the best option. The Hereditary Neuropathy Foundation is working to change that. The foundation suggests that people with CMT…