Moderate to severe anxiety, depression, and general distress affect up to 25% of people with Charcot-Marie-Tooth disease (CMT), according to data from an Italian national registry. Having a more severe disease correlated with experiencing moderate to severe depression and general distress. Nearly half of patients with mental health conditions…

Four weeks ago, I heard some unsettling news coming from my radio. And when I turned to my Twitter feed, I saw disturbing images parading across my computer screen. At the time, I didn’t know what to feel or how to process what was going on. However, I…

During tough and stressful times, it’s important to remember to hold each other close. This time, though, let’s take that figuratively and not literally. A recent conversation with a Charcot-Marie-Tooth community icon, Bernadette Scarduzio, reminded me of this lesson.  It may…

Are you feeling anxious about COVID-19 and its effects around the world? You are not alone. In these times of uncertainty, it’s natural to feel anxious. I, too, am a bit overwhelmed by the situation. We are in a unique time, and no one knows the best way to deal…

Sleep issues are not uncommon for Charcot-Marie-Tooth (CMT) patients: obstructive sleep apnea and restless leg syndrome have been associated with CMT1. Fatigue is my most frustrating symptom, so I have tried many strategies to help me sleep better. A few friends recommended that I try a weighted…

I was recently reminded why I avoid the grocery store on a Sunday morning: the crowds! I find it difficult to navigate a crowded store, especially when there are shopping carts and other items blocking the aisles. This is not only an issue at the grocery store. As my Charcot-Marie-Tooth…

Over a year ago, my dear friend told me that she planned to get married on the beach. I must admit, I was a little concerned about going to her wedding. Then, she told me it would include a three-night cruise. Yikes, how will I manage…

I have been told by many that stress can exacerbate the symptoms of Charcot-Marie-Tooth, and when I am stressed, anxious, or feeling overwhelmed, my symptoms are worse. So, I’m working hard to add balance to my life. Each…