As the holiday season approaches, so does the opportunity to travel. However, traveling with a disability can be…
Jill Price
Jill was diagnosed with CMT 1A at the age of 2 . She is a fourth-grade teacher and mom to a teenage son, who also has CMT. Jill loves photography, travel, and spending time with family and friends. She researches and writes tips that make life with disability a little easier.
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Articles by Jill Price
What do I wish I knew about Charcot-Marie-Tooth disease (CMT) when I was younger? That other people…
I have an ongoing concern: My feet are cold all of the time! The temperature outdoors can be…
I’m Feeling Overwhelmed by CMT
I’ll be frank about how I’m feeling about my disease. Lately, I have been struggling with feeling overwhelmed…
I have AFO woes … again. I am becoming very frustrated with my ankle-foot orthoses. They may…
Learning to Manage My Spoons
I used too many spoons today. I will pay for it tomorrow. According to the “spoon theory,”…
This week, I really did not like this disease. I have Charcot-Marie-Tooth disease type 1A, and for…
Two months ago, I had an interesting conversation with my eye doctor while she looked at photos of…
Mom Guilt is Worsened by CMT
Mom guilt will always get you. Why do I feel guilty when I cannot do something or be…
There’s No Need to Apologize
I constantly say sorry by instinct and without reason. I’ve even been apologizing for my disability. No more apologies! I…