The other day, I had to climb the bleachers at my son’s high school. I admit the prospect scared me a little, not only because of the height factor but also because there weren’t adequate railings for me to hold onto. I have Charcot-Marie-Tooth type 1A and…
We pulled up chairs so that we could sit closer to each other. She pointed at her shoe, to a place about an inch from the tip. “See, my toes only come up to about here,” she said. “But you know we buy shoes more for the width than the…
Someone asked me what I miss the most since being diagnosed with Charcot-Marie-Tooth disease (CMT). I had to think hard about it, as I’ve had CMT for as long as I can remember. Has it always been this bad? No, it has definitely progressed more than I…
In grade school, I used to launch my ankle-foot orthoses (AFOs) from my foot and into the air by twisting my toes as I kicked as high and as hard as I could. I would watch my AFOs spin in the sky before they fell to the ground. The…
I recently realized that I have had no lower back pain for a few weeks. Wow! I am almost afraid to say anything, in fear I might jinx it. I typically suffer from pain in my sacroiliac (SI) joint, lower back, and hip. Some days I can…
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