Many of us with Charcot-Marie-Tooth disease (CMT) have struggled to find medical professionals adept at working with patients like us. A good, productive patient-provider relationship requires effective communication, understanding, trust, and appropriate investment from all parties. Considering that recently, I had a revelation: This kind of dynamic also…

I don’t plan to ever discourage anyone from making New Year’s resolutions. But I also like to think I’m not the only one who, at one point or another, had an aspiration to get fit and set it as some kind of nebulous goal to be accomplished by the end…

“No, it’s not really my thing,” I responded to a friend and self-admitted “gym junkie” in college when he offered to show me the ropes in weight training. These days, I regret turning down his offer. If life were a video game, my friend’s offer would have been the…

The Hereditary Neuropathy Foundation (HNF) has launched a new virtual fitness platform to promote the practice of safe physical activity among patients with Charcot-Marie-Tooth (CMT) disease. The “Movement is Medicine” Fitness Ambassador program will enable members of HNF’s Movement is Medicine initiative to have access to weekly live…

“Progress over perfection.” Someone said this to me the other day when talking about weight loss. I began to think about how this idea can apply to my life. I have Charcot-Marie-Tooth disease and wear ankle-foot orthoses. In many ways, this makes being perfect nearly impossible. My gait…