Young Lee,  —

Young is a writer with CMT 1A living in Cary, North Carolina. He graduated from NC State University in 2013 with degrees in economics and international studies. After working for a few years in finance, Lee decided to shift his attention toward writing and library studies. Although Lee first learned he had CMT at a very young age, he didn’t participate much in the CMT community until 2018, when his friend and fellow BioNews writer, Kevin Schaefer, encouraged him to explore and learn more about this very important aspect of his life.

Articles by Young Lee

My Family Understands the CMT Challenges I Face

Last week, I wore my ankle-foot orthoses (AFOs) while taking an evening stroll. I marveled at how much easier walking is with AFOs than without them. It was one of the highs of my week. But I also had some lows, when what I call “CMT moments” happened. For…

The CMT Calculus of Attending a Wedding

I arrived at the venue more than an hour before my buddy’s wedding rehearsal was supposed to start. Even though the rehearsal itself was a kind of preparation, and my role in the ceremony wasn’t very big, I wanted to check out and prepare for a few things. Some…

Returning to AFO Life as an Adult Prompts New Observations

When it comes to doing cardio at the gym, I’ve always preferred the stationary bike to the treadmill. I have yet to fall off a stationary bike, but I’ve fallen off a treadmill several times in my life. “Heel-toe, heel-toe, heel-toe-toe. Wait, that’s not right!” “Heel-toe, heel-ankle. Ouch!”…

Seeing CMT on National TV Was a Pleasant Surprise

When Bernadette Scarduzio, a Charcot-Marie-Tooth disease (CMT) patient-advocate and star of the CMT documentary “Bernadette,” was in the midst of filming her documentary 10 years ago, she often thought about all the celebrities that appear in movies and on television. She wondered if any of them shared her…

Lack of Clothing Options in Disability Fashion Gives Me a Fit

Let’s talk about disability fashion. Word on the street is Gen-Z killed skinny jeans. The ritual of stretching your pant legs over every contour of your thighs and calves before leaving home is apparently over. I’m not shedding any tears. I’m just one guy with Charcot-Marie-Tooth disease (CMT) in…

Why I Decided to Get New Parking Placards

I got a new handicapped parking placard a few weeks ago. Two, in fact, as the old one had expired. I even splurged on nice plastic covers to protect them. Why did I feel the need to get new placards? Although I have Charcot-Marie-Tooth disease (CMT), a condition that greatly…