Author Archives: Young Lee

Rare Disease Day Reminds Me of the Importance of Community

For much of my life, I couldn’t imagine a better world for those of us with disabilities, rare diseases, and chronic conditions. I just wasn’t thinking about the disability rights movement. I didn’t feel like I fit into what I had perceived as “disabled,” and I didn’t really…

A Toast to the Good Things in a Difficult Year

I had a conversation with someone recently about the positive things we were grateful for in the past year. Perhaps it is a typical topic of discussion this season. However, this year hasn’t felt like a normal year for me, and I know many others feel the same.

If Lessons Are Gifts, CMT Handed Me a Few

I was looking at some Christmas decorations at a store the other day, a set of oversized, faux gift-wrapped boxes complete with bows and lights. And they reminded me of something I had heard before about disabilities, including Charcot-Marie-Tooth disease (CMT): For those of us affected by disability, we can…

Remembering to Appreciate My Legs

My Chinese professor in college once told my class that according to popular belief, a person who hasn’t been to the Great Wall of China cannot yet call himself a man (or woman).  When I was…

Reconnecting With Nature

The trees in North Carolina are beautiful right now. I don’t even mind running into traffic during my commute to work these days. The trees that line the route are gorgeous draped in their autumn colors. But seeing nature’s beauty from the vantage of a car…