A CMT Tattoo Has Taught Me About the Value of True Friendship

Jill Price avatar

by Jill Price |

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How do you know you are important to people? What is a sign that you are not only loved but really important to them?

The other day, my dearest friend told me she was getting a tattoo. I thought, “OK, that is great, I’m glad you decided to do that.” Then she showed a picture of the artwork — and I cried. It was a shark holding the blue Charcot-Marie-Tooth awareness ribbon. The picture she sent me was similar to this one. She was getting a tattoo for me! I found it incredible that somebody would do this for me.

When I asked her why she would do this for me, her answer was simple, yet powerful. She said that she is proud of me and how I handle my disease. I have Charcot- Marie-Tooth disease type 1A. She wants everyone to know about CMT, and that I am a CMT warrior. How can I argue with that? I may not always agree that I handle my CMT well, but she reminds me all the time how far I have come in my life despite having the issues CMT brings. Whenever I feel defeated by my CMT, I think of this.

I often feel defeated and helpless. It stems mostly from not being able to do something or falling or dropping things. I know that these are small things, and I try not to let them get me down or stop me from living my life. Some days are easier than others. I look at the photo she sent me of her tattoo with my initial in the ribbon, and that picture reminds me of the people who love me unconditionally. That picture reminds that I am capable and CMT has nothing on me. That picture also reminds me of the people who see me and not my disability.

The fact that my friend got a tattoo for me still makes me teary-eyed but in a good way. We have been friends for a very long time, and we’ve been through a lot together. I am always amazed at how fiercely she loves her friends, who are family to her. I am more than proud to have her in my tribe! This act is a constant reminder of what I can do and with the unconditional love of a friend.


Note: Charcot-Marie-Tooth News is strictly a news and information website about the disease. It does not provide medical advice, diagnosis, or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website. The opinions expressed in this column are not those of Charcot-Marie-Tooth News or its parent company, Bionews Services, and are intended to spark discussion about issues pertaining to Charcot-Marie-Tooth.


sara han avatar

sara han

I like this article because, it is exactly how i used to look at life with CMT. I used to concentrate on all the things that I couldn't do or thinks that other people said that I couldn't do. I also learned that you have to learn to be comfortable in your own skin before you can concentrate on the things that you can do and love to do. My aunt looked at her CMT as one more thing that she was not going to stop her from loving life. Yes, it is embarrassing to drop stuff and to fall in public but, she taught me that it's ok to be who you are. Really if you think about it no one is completely normal or perfect and have some form of disability whether they realize it or acknowledge it.

Jill Price avatar

Jill Price

You are very lucky to have such a wonderful aunt!!!


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