CMT and Me — Jill Price

I was released from physical therapy, finally! Don’t get me wrong, I liked my physical therapist, even though he made me work hard during our 45 minutes together each week.

How do you know you are important to people? What is a sign that you are not only loved but really important to them? The other day, my…

In my continuing ankle-foot orthosis journey, I picked up my new AFO for my left foot. It has been a very different experience…

My 14-year-old son has Charcot-Marie-Tooth disease, but you would never know it. He is an active, adventurous, and goofy teenager who does not let CMT stop him…

“I appreciate the struggle. I have mobility issues, too.” A person I had just met said this to me one day. I was…

Lately, I have been doing a lot of reading about mindsets. I am taking an online class about how mindset impacts our learning. It’s about how by changing what you say to…

“What did you do to yourself?” That was the first thing the saleswoman at the dress shop said to me before she even said hello. I was taken aback…

Have you ever had a headache so severe that all you can do is stay in bed? The kind in which every sound and bright light sends ripples of pain through your head? I…

It was a busy week of doctor appointments — and decisions. First, I went to see my new orthotist. I’m so glad I decided to speak up about how…

Why is summer break so important? Because teaching is tough and exhausting. Throw in a physical disability like Charcot Marie-Tooth, and it is even more challenging.

How should I exercise? Which activity is best for me to do? Those are always repeated questions when you have a chronic progressive disorder. I have Charcot-Marie-Tooth. I would like to lose weight…

It’s been a week of firsts for me. It was an overwhelming week in many ways, although I did learn a few things along the way about myself and the importance of speaking up.