There’s no road map of what to expect with a disability or chronic condition such as my disease, Charcot-Marie-Tooth (CMT).
Articles by Young Lee
It’s getting colder in my corner of the United States. I can feel it in my hands. For me, it’s…
A few weeks ago, I spoke with John Nixon, a bodybuilder with Charcot-Marie-Tooth disease (CMT), about his experiences in…
John Nixon, like me, has Charcot-Marie-Tooth disease (CMT). Based on how he tells his story, the CMT symptoms…
From a cursory internet search, it’s easy to find many articles that describe certain Charcot-Marie-Tooth (CMT) symptoms as mild.
I remember the first time I saw the Zeen. A fellow Charcot-Marie-Tooth (CMT) patient had posted a video…
After a recent conversation with Bernadette Scarduzio, my friend and fellow Charcot-Marie-Tooth (CMT) advocate, regarding the inaccessibility of…
There are many things we in the Charcot-Marie-Tooth (CMT) community mourn. Among them are old passions, activities we used…
Those of us with Charcot-Marie-Tooth disease (CMT) know it touches nearly every aspect of our lives. That’s true for…
Touch, taste, smell, hearing, and seeing: I don’t know if things are different these days, but when I was in…