Coping and Hoping: CMT Patient Keeps Going

Because Charcot-Marie-Tooth (CMT) disease ran in her family, Denise Snow suspected in high school that frequent falls were more than clumsiness. “I recognized the disease in myself,” said Snow, 63, after a Charcot-Marie-Tooth Association (CMTA) patient conference in Detroit. “As time went on, symptoms increased. I started…

CMT and the Importance of Being an Advocate for Myself

It’s been a week of firsts for me. It was an overwhelming week in many ways, although I did learn a few things along the way about myself and the importance of speaking up. It all started after a visit to my orthotist. My ankle-foot orthotics (AFOs) are causing pain…