On My Own Two — Young Lee

When those of us with Charcot-Marie-Tooth disease (CMT) bring up our condition, a common response is, “So how does that affect your teeth?” It’s a frustrating misconception, and we may find ourselves wondering if…

I’m sure most CMTers will agree that Charcot-Marie-Tooth disease (CMT) often sucks. It can feel like there’s nothing redeemable about living with this chronic condition. CMT wears away at our physical strength and…

I have the words “Charcot-Marie-Tooth” set as one of my Google alerts. As a result, I’ve come across many articles about CMT and CMTers. I love this. For me, it’s…

I made my friend from childhood wait while I put on my ankle-foot orthoses (AFOs). We had just finished eating our eggs and toast at a fancy breakfast place, but we hadn’t seen…

When I was a kid, I felt as if I were the only one with Charcot-Marie-Tooth disease (CMT). I felt like I was one of one. Though I did have…

If I woke up early enough as a child, I could catch my grandmother, my “Po Po,” doing her tai chi exercises in an open area of our house right…

I can’t say I’ve always loved every moment of being Asian American, but I’ve always felt connected to Asian American culture. And I appreciate that. I see myself in Asian…

Last week, I wore my ankle-foot orthoses (AFOs) while taking an evening stroll. I marveled at how much easier walking is with AFOs than without them. It was one of the highs of…

I arrived at the venue more than an hour before my buddy’s wedding rehearsal was supposed to start. Even though the rehearsal itself was a kind of preparation, and my role in the…

When it comes to doing cardio at the gym, I’ve always preferred the stationary bike to the treadmill. I have yet to fall off a stationary bike, but I’ve fallen off a treadmill several…

When Bernadette Scarduzio, a Charcot-Marie-Tooth disease (CMT) patient-advocate and star of the CMT documentary “Bernadette,” was in the midst of filming her documentary 10 years ago, she often thought about all the…

Let’s talk about disability fashion. Word on the street is Gen-Z killed skinny jeans. The ritual of stretching your pant legs over every contour of your thighs and calves before leaving home is…