On My Own Two — Young Lee

Until recently, I never took anything written by art critics personally. But a few weeks ago I started reading criticism of Andrew Wyeth’s painting “…

Through her loosely autobiographical graphic novel, “El Deafo,” author Cece Bell introduces readers to her childhood self as she tries to navigate her…

“I like your shirt.” I didn’t expect to hear such a comment while wearing my Charcot-Marie-Tooth Association (CMTA) T-shirt. It happened twice in…

I leave strange footprints. Luckily, I usually walk on solid ground and don’t need to think about them. Most days, I only encounter paved streets and driveways, carpeted floors,…

“Askew,” a work of art by American painter and sculptor Roxy Paine, stands just outside the West Building at the North Carolina…

At the start of 2019, I knew little about Charcot-Marie-Tooth (CMT). My lack of knowledge about the disease meant that I had gaps in understanding of myself, a person with CMT, and a…

Tina Trahan said she was sitting in a parking lot in May 2015 when she cried out to God, asking him to give her cancer. Cancer, she thought, offered a greater chance…

A high school Spanish teacher introduced me to the practice of meditation. A few times a semester, he would begin or end his class with it. During these sessions, he would suggest that my…

September is CMT Awareness Month, and my social media feeds have been flooded with inspirational quotes and infographics related to Charcot-Marie-Tooth (CMT). It’s rare that one of these posts…

“Maybe there will be others at the conference who will commiserate with me,” my sister said as we sat among our bags at gate B6 in Detroit’s Metro Airport. Despite being prechecked…

My memories of physicians first explaining the details of Charcot-Marie-Tooth (CMT) to me are hazy at best. I remember something about nerves, and of messages having difficulty going from my brain to my…

“Chongxi.” It’s a Chinese term referring to the superstitious custom of trying to erase a misfortune by overriding it with a joyous event or feeling. I stumbled upon this…