On My Own Two — Young Lee

At the start of 2019, I knew little about Charcot-Marie-Tooth (CMT). My lack of knowledge about the disease meant that I had gaps in understanding of myself, a person with CMT, and a beneficiary of a wider…

Tina Trahan said she was sitting in a parking lot in May 2015 when she cried out to God, asking him to give her cancer. Cancer, she thought, offered a greater chance of survival than what a…

A high school Spanish teacher introduced me to the practice of meditation. A few times a semester, he would begin or end his class with it. During these sessions, he would suggest that my classmates and I sit in…

September is CMT Awareness Month, and my social media feeds have been flooded with inspirational quotes and infographics related to Charcot-Marie-Tooth (CMT). It’s rare that one of these posts gives me information I hadn’t…

“Maybe there will be others at the conference who will commiserate with me,” my sister said as we sat among our bags at gate B6 in Detroit’s Metro Airport. Despite being prechecked by the Transportation Security Administration…

My memories of physicians first explaining the details of Charcot-Marie-Tooth (CMT) to me are hazy at best. I remember something about nerves, and of messages having difficulty going from my brain to my extremities. I remember not feeling…

“Chongxi.” It’s a Chinese term referring to the superstitious custom of trying to erase a misfortune by overriding it with a joyous event or feeling. I stumbled upon this phrase a few weeks ago…

“If they’re really thinking about their audience, and if they provide water bottles, they’ll also have hand grips there,” my father said, as he drove my sister and I along familiar roads on our way to…

I was the only Asian-American on my college study-abroad trip to China that year. I couldn’t speak much Mandarin at all, but still, I could recognize the absurdity when a classmate suggested I hold up the sign…

A few days ago, I found myself searching online for Charcot-Marie-Tooth (CMT) memes. While my actions might seem a bit juvenile, I needed a laugh. I was also looking for some insight into the CMT community — this…

In April 1977 more than 100 people with disabilities entered the Department of Health, Education, and Welfare (HEW) office in San Francisco and, in protest, they refused to leave.  Three years prior, Congress…

I remember being a moody preteen and exasperating my tennis instructor. He was convinced that I wasn’t trying. I was slow to react and sluggish on the court. I didn’t seem to be giving it my all. And, to…