Advocacy Partner: Muscular Dystrophy Association
About the Muscular Dystrophy Association
Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and over 300 related neuromuscular conditions. For nearly 75 years, MDA has led the way in accelerating research, advancing care, and advocating for the support of our families. MDA’s mission is to empower the people we serve to live longer, more independent lives.
Muscular Dystrophy Association supports research, care, and advocacy for Charcot-Marie-Tooth.
For support, guidance, and resources please visit: MDA Resource Center
By Phone: 1-833-ASK-MDA1 (1-833-275-6321)
By Email: [email protected]
Upcoming events
- There are no upcoming events.
About Advocacy Partners
The information above is provided by our partner. Learn more about our advocacy partners here.
Recent Posts
- 3D-printed ankle braces may help with balance, foot pain: Study December 11, 2024
- Considering exercise safety while working out with CMT December 10, 2024
- What I’ve learned about finding an exercise regimen with CMT November 19, 2024
- Children with CMT should be screened for hip dysplasia: Study November 13, 2024
- Endgame campaign surpasses $10M raised for CMT1A treatments October 2, 2024
- How knowing my father, another CMTer, has changed my life September 24, 2024
- The importance of finding an enjoyable form of exercise September 5, 2024
- Community invited to ‘speak out’ in September, CMT Awareness Month September 4, 2024
- Cochlear implants for CMT may improve hearing, quality of life August 7, 2024
- Living with CMT doesn’t mean I exist in a separate world July 23, 2024