On My Own Two by Young Lee

November 12, 2019November 8, 2019

Having Those Awkward Conversations About CMT

“I like your shirt.” I didn’t expect to hear such a comment while wearing my Charcot-Marie-Tooth Association (CMTA) T-shirt. It happened twice in the past two months, and when ... Read more

November 5, 2019November 1, 2019

My Footprints Are Reminders of My Weakness

Columns, On My Own Two by Young Lee

I leave strange footprints. Luckily, I usually walk on solid ground and don’t need to think about them. Most days, I only encounter paved streets and driveways, carpeted floors, ... Read more

October 29, 2019October 25, 2019

Thoughts on CMT and ‘Askew’

Columns, On My Own Two by Young Lee

“Askew,” a work of art by American painter and sculptor Roxy Paine, stands just outside the West Building at the North Carolina Museum of Art. It’s an almost 50-foot, tree-like ... Read more

October 22, 2019October 18, 2019

Reflections on Lessons Learned from Friends with Different Disabilities

Columns, On My Own Two by Young Lee

At the start of 2019, I knew little about Charcot-Marie-Tooth (CMT). My lack of knowledge about the disease meant that I had gaps in understanding of myself, a person ... Read more

October 8, 2019October 11, 2019

It’s Time to Call CMT by Its Name

Columns, On My Own Two by Young Lee

Tina Trahan said she was sitting in a parking lot in May 2015 when she cried out to God, asking him to give her cancer. Cancer, she thought, offered ... Read more

October 1, 2019September 27, 2019

Trying Meditation as a Form of Self-care

Columns, On My Own Two by Young Lee

A high school Spanish teacher introduced me to the practice of meditation. A few times a semester, he would begin or end his class with it. During these sessions, he ... Read more

September 24, 2019September 20, 2019

Adjusting My Diet to Better Manage CMT

Columns, On My Own Two by Young Lee

September is CMT Awareness Month, and my social media feeds have been flooded with inspirational quotes and infographics related to Charcot-Marie-Tooth (CMT). It’s rare that one of these posts ... Read more

September 17, 2019September 13, 2019

Making Connections and Finding Camaraderie at My First CMTA Conference

Columns, On My Own Two by Young Lee

“Maybe there will be others at the conference who will commiserate with me,” my sister said as we sat among our bags at gate B6 in Detroit’s Metro Airport. ... Read more

September 3, 2019August 29, 2019

Is It Me or My CMT?

Columns, On My Own Two by Young Lee

My memories of physicians first explaining the details of Charcot-Marie-Tooth (CMT) to me are hazy at best. I remember something about nerves, and of messages having difficulty going from ... Read more

August 27, 2019August 28, 2019

My Version of ‘Chongxi’ and CMT

Columns, On My Own Two by Young Lee

“Chongxi.” It’s a Chinese term referring to the superstitious custom of trying to erase a misfortune by overriding it with a joyous event or feeling. I stumbled upon this ... Read more

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