On My Own Two by Young Lee

September 17, 2019September 13, 2019

Making Connections and Finding Camaraderie at My First CMTA Conference

Columns, On My Own Two by Young Lee

“Maybe there will be others at the conference who will commiserate with me,” my sister said as we sat among our bags at gate B6 in Detroit’s Metro Airport. ... Read more

September 3, 2019August 29, 2019

Is It Me or My CMT?

Columns, On My Own Two by Young Lee

My memories of physicians first explaining the details of Charcot-Marie-Tooth (CMT) to me are hazy at best. I remember something about nerves, and of messages having difficulty going from ... Read more

August 27, 2019August 28, 2019

My Version of ‘Chongxi’ and CMT

Columns, On My Own Two by Young Lee

“Chongxi.” It’s a Chinese term referring to the superstitious custom of trying to erase a misfortune by overriding it with a joyous event or feeling. I stumbled upon this ... Read more

August 6, 2019August 6, 2019

A Walk in the Park for CMT Brings Us a Step Closer to a Cure

Columns, On My Own Two by Young Lee

“If they’re really thinking about their audience, and if they provide water bottles, they’ll also have hand grips there,” my father said, as he drove my sister and I ... Read more

July 30, 2019July 26, 2019

Invisible Disability Clashes with Public Perception

Columns, On My Own Two by Young Lee

I was the only Asian-American on my college study-abroad trip to China that year. I couldn’t speak much Mandarin at all, but still, I could recognize the absurdity when ... Read more

July 23, 2019July 19, 2019

What Does It Meme to Be a Part of the CMT Community?

Columns, On My Own Two by Young Lee

A few days ago, I found myself searching online for Charcot-Marie-Tooth (CMT) memes. While my actions might seem a bit juvenile, I needed a laugh. I was also looking ... Read more

July 16, 2019July 12, 2019

I’m Learning More About the Push for Disability Rights

Columns, On My Own Two by Young Lee

In April 1977 more than 100 people with disabilities entered the Department of Health, Education, and Welfare (HEW) office in San Francisco and, in protest, they refused to leave.  Three ... Read more

July 9, 2019July 3, 2019

I’m Coming Out of My CMT Closet to Talk About My Disease

Columns, On My Own Two by Young Lee

I remember being a moody preteen and exasperating my tennis instructor. He was convinced that I wasn’t trying. I was slow to react and sluggish on the court. I ... Read more

July 2, 2019June 28, 2019

Going Over My Old CMT Records

Columns, On My Own Two by Young Lee

“Referred mainly because of toe-walking.”  “Well, these few words solve a bit of a mystery for me,” I thought. A few weeks ago, I contacted my former pediatrician’s office ... Read more

June 25, 2019July 10, 2019

Jamal Hill: Pushing the Limits with CMT

Columns, On My Own Two by Young Lee

Jamal Hill likes to keep a busy schedule. After all, he’s hoping to qualify for the 2020 Paralympic Games in Tokyo. And although he’s currently the No. 1 ranked ... Read more