On My Own Two by Young Lee

July 16, 2019July 12, 2019

I’m Learning More About the Push for Disability Rights

Columns, On My Own Two by Young Lee

In April 1977 more than 100 people with disabilities entered the Department of Health, Education, and Welfare (HEW) office in San Francisco and, in protest, they refused to leave.  Three ... Read more

July 9, 2019July 3, 2019

I’m Coming Out of My CMT Closet to Talk About My Disease

Columns, On My Own Two by Young Lee

I remember being a moody preteen and exasperating my tennis instructor. He was convinced that I wasn’t trying. I was slow to react and sluggish on the court. I ... Read more

July 2, 2019June 28, 2019

Going Over My Old CMT Records

Columns, On My Own Two by Young Lee

“Referred mainly because of toe-walking.”  “Well, these few words solve a bit of a mystery for me,” I thought. A few weeks ago, I contacted my former pediatrician’s office ... Read more

June 25, 2019July 10, 2019

Jamal Hill: Pushing the Limits with CMT

Columns, On My Own Two by Young Lee

Jamal Hill likes to keep a busy schedule. After all, he’s hoping to qualify for the 2020 Paralympic Games in Tokyo. And although he’s currently the No. 1 ranked ... Read more

June 18, 2019June 14, 2019

We Are More Than Our Mutations

Columns, On My Own Two by Young Lee

Linda Crabtree’s autobiography, “CMT and Me,” begins with loving descriptions of her parents. Her words, accompanied by childhood photos printed on the pages, gave me a vivid sense of ... Read more

June 11, 2019June 7, 2019

My Appreciation of the Online CMT Community Has Grown

Columns, On My Own Two by Young Lee

Five years ago, I had a conversation with one of my writer friends. I had heard through the grapevine that she was working on a new story: a thriller ... Read more

June 4, 2019May 31, 2019

Reminiscing with Friends and Recognizing the Loss of Abilities

Columns, On My Own Two by Young Lee

When I meet up with old college friends, we often spend time reminiscing. We recall late nights, trips, and past relationships. Looking back, we think about how much has ... Read more

May 28, 2019May 27, 2019

Thinking About the Line Between Nostalgia and Glamorization

Columns, On My Own Two by Young Lee

This past week, I grabbed lunch with an old friend, Kevin Schaefer. He writes a great column for SMA News Today. Our conversations over lunch usually revolve around nerdy ... Read more

May 21, 2019May 17, 2019

I’m Hoping to Bump into Others Like Me

Columns, On My Own Two by Young Lee

About 10 years ago, I found myself walking down a busy side street near one of the larger night markets in Taipei, Taiwan. No direct family members lived there, ... Read more

May 14, 2019May 10, 2019

I Miss My Childhood Fearlessness of Being Open About My CMT

Columns, On My Own Two by Young Lee

Once, while I was walking down the hallway with my classmates, my high school Spanish teacher asked me if I had hurt my ankles. It may have been the ... Read more