On My Own Two by Young Lee

March 19, 2019March 15, 2019

When Dealing with CMT Symptoms, It’s OK to Improvise

Among the many symptoms of Charcot-Marie-Tooth disease is a decrease in hand dexterity. This crossed my mind a few months ago while I was filling up on gas, and ... Read more

March 12, 2019March 11, 2019

Pondering Questions of CMT and Identity

Columns, On My Own Two by Young Lee

A friend and I surprised each other recently. I casually mentioned that I have Charcot-Marie-Tooth (CMT). And she revealed that I had never previously brought up the subject. We ... Read more

March 5, 2019March 4, 2019

Leaning on Friends

Columns, On My Own Two by Young Lee

I don’t particularly like hiking. Steep inclines and unpaved pathways make me nervous. And sometimes it feels like I have pogo sticks instead of feet. I don’t always know ... Read more

February 26, 2019February 25, 2019

I’ve Discovered the Importance of the CMT Community

Columns, On My Own Two by Young Lee

We pulled up chairs so that we could sit closer to each other. She pointed at her shoe, to a place about an inch from the tip. “See, my ... Read more

February 19, 2019February 19, 2019

A Thank You to My Old AFOs

Columns, On My Own Two by Young Lee

In grade school, I used to launch my ankle-foot orthoses (AFOs) from my foot and into the air by twisting my toes as I kicked as high and as ... Read more

February 12, 2019February 8, 2019

An Introduction to a New CMT Column: ‘On My Own Two,’ by Young Lee

Columns, On My Own Two by Young Lee

Recently, my father sent me a copy of doctor’s notes he received in 1989. Those familiar with Charcot-Marie-Tooth disease (CMT) would recognize many of the phrases scattered throughout: “chronic ... Read more

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