The trees in North Carolina are beautiful right now. I don’t even mind running into traffic during my commute to work these days. The trees that line the route are gorgeous draped in their autumn colors. But seeing nature’s beauty from the vantage of a car…
On My Own Two — Young Lee
Young Lee (he/him) is a writer with CMT1A living in Cary, North Carolina. He graduated from NC State University in 2013 with degrees in economics and international studies. After working for a few years in finance, Lee decided to shift his attention toward writing and library work. Although Lee first learned he had CMT at a very young age, he didn’t participate much in the CMT community until 2018 when his friend and fellow writer Kevin Schaefer encouraged him to explore and learn more about this very important aspect of his life.
Second in a series. Read part one. Last year, the world lost a powerful voice in the disability community with the death of Alice Wong. Born with a type of spinal muscular atrophy (SMA), her life was not given much attention by mainstream media, and her ideas…

It’s the reason I wore a T-shirt emblazoned with the words “Charcot-Marie-Tooth” to begin with: to spread awareness and to encourage questions. But when I heard a voice behind me ask about CMT while I was standing…
Many folks are familiar with the saying that there is always light at the end of the tunnel. It’s a nice expression that refers to the fact that unfortunate circumstances are often temporary. But author and retired Navy SEAL David Goggins writes in his book, “Can’t Hurt…
I never considered myself high-strung or irritable until I entered a spa for the first time last weekend. The employees spoke in such hushed and relaxed tones that I felt hyperactive and tense by comparison. I was there for a float therapy…
I last sat on my piano bench over a year ago. For most of the past year, I had been neglecting the bench’s original purpose by stacking library books and old notes on it. But a few days ago, I decided to clear it off, and ended up…
Is it wrong for me to say that I find Charcot-Marie-Tooth disease (CMT) undesirable? Is it entirely due to internalized ableism when I say I wish I did not have CMT? When we talk about the problems…
I don’t like going to the gym. But, I like being at the gym. And I really love returning from the gym. I reconfirmed these facts last week. A few days ago, North Carolina relaxed some…
Thoughts and memories of recess games and gym classes rolled into my mind last week as I flipped through the pages of “The Ables,” a young adult novel by Jeremy Scott. It’s a story about a group of…
My paternal grandmother turned 97 this week. As much as I would have liked to be with her to celebrate her birthday, I’m trying to limit my in-person contact with the elderly during this chaotic time. But I’m glad my other family members and I were at least…
Although there are many words to describe the disabled experience, I’ve been thinking a lot about the word “wariness” this week. Many of us in the disabled community are indeed wary of many things. We go through great lengths to anticipate pitfalls, challenges, and risks in our everyday…
I was manning three active burners on the stovetop, deep into my food preparation for the week. On one of the front burners was a pan of chicken skins sizzling in a pool of rendered fat. In a pot to the side, onions, carrots, and celery were sweating…
A scene from the animated Nickelodeon show “Avatar: The Last Airbender” has been on my mind recently. It’s an exchange between a character named Iroh, an old and wise retired general, and his nephew, Zuko, a young and…
Recent Posts
- Gene therapy Engensis shows early signs of benefit in CMT1A patients
- Unpacking my beliefs on physical strength, part 2
- Unpacking my beliefs about physical strength, part 1
- NMD Pharma’s oral drug ignaseclant improves muscle strength in CMT study
- Healthy eating can be challenging for adults with CMT, new study finds