On My Own Two — Young Lee

Those of us with Charcot-Marie-Tooth disease (CMT) know that it takes things from us in profound ways. For example, it chips away at our balance and leads to muscle atrophy. Because CMT symptoms often manifest in unpredictable ways, we…

I’ve often looked to my father as an example. That’s been true in many contexts, but it also includes his living well as a person with Charcot-Marie-Tooth (CMT) disease. From a young age, I’ve known that both…

Like many, I’ve enjoyed watching incredible athletes showcase their abilities at this year’s Paris Olympics and Paralympics. The Olympic Games always remind me of all the forms athleticism can take. There are countless sports out there that are…

Sometimes it feels like some of us live in separate worlds with different rules and dynamics. I’ve noticed this while chatting with friends, co-workers, and even strangers about Charcot-Marie-Tooth disease (CMT), my symptoms, and what it’s like…

A few weeks ago I saw my primary care physician for a routine physical exam, the first I’ve had in person since the height of the COVID-19 pandemic. I updated him on significant life events and asked a…

I don’t know if it’s possible to live with Charcot-Marie-Tooth disease (CMT) without developing a long-term relationship with physical pain. Recognizing this, the Hereditary Neuropathy Foundation (HNF) provides a guide to common pain remedies called the “…

I’m an Asian American with Charcot-Marie-Tooth disease (CMT). Of course, I’m more than this, but these two cherished identities of mine interact with each other, sometimes in profound ways. The way I experience life as an Asian American…

At my day job, I work in a midsized public library system, which I really enjoy. I help folks find books and other resources and work to make them feel more connected to their community. We don’t charge for…

If being a man truly meant being as swift as a coursing river, with all the force of a great typhoon, with all the strength of a raging fire, all while being as mysterious as the dark…

There’s no road map of what to expect with a disability or chronic condition such as my disease, Charcot-Marie-Tooth (CMT). Sure, I have typical symptoms to consider: weak hands and ankles, foot drop, fatigue, and chronic pain. But…

It’s getting colder in my corner of the United States. I can feel it in my hands. For me, it’s not just the sensation of the chilly atmosphere nipping at my bare skin. My hand strength also seems to…