News

App-based Study Seeks Real-world Data on the Personal Impact of CMT

An international observational study using a smartphone-based app called CMT&Me is exploring the impact of Charcot-Marie-Tooth disease (CMT) on patients and caregivers. The study (NCT03782883) was designed by Vitaccess in collaboration with Pharnext. Its goal is to collect detailed patient-reported data to help researchers and clinicians…

CMT UK Offering Video Series of Exercises for Home Use

To promote physical activity in people with Charcot-Marie-Tooth (CMT) disease, the charity CMT UK shared seven exercise videos that patients can carry out in the comfort of their home. The exercises are presented by Rebekah Knight, a physiotherapist diagnosed with CMT1A, the most common form of CMT…