Author Archives: Hawken Miller

Advocates Across Ohio, US, Join Forces to ‘Walk 4 CMT’

This weekend at the Westgate Park Open Air Shelterhouse in Columbus, Ohio, walking one step will make an even bigger footprint in the Charcot-Marie-Tooth (CMT) community. On Saturday, nearly 50 people will walk a mile around the park to raise funds for the Charcot-Marie-Tooth Association (CMTA) and…

New Streaming Channel Showcases Rare Disease Films

When the COVID-19 pandemic forced the postponement of a rare disease film festival originally slated for May, its organizers set out to find a new way to bring the films to an audience.  Co-founders Daniel DeFabio and Bo Bigelow, who are both fathers of children with…