About a year ago, my sister and I went to an arts and crafts store. Upon entering, I instinctively wanted to steer the shopping cart, an offer my able-bodied friends and acquaintances often appreciate. But before I could get a complete sentence out of my mouth,…
“We’re all Forky, feeling like we’re trash, but we’re also all Woody, trying to convince each other that we’re not trash.” A friend of mine tweeted those words shortly after seeing “Toy Story 4” last year. At the time, I thought it was a cute and…
“TrumpWearsAdultDiapers”: It’s a hashtag I first noticed trending in the United States on the morning of June 14. And I remember looking at it with mixed emotions. On one hand, I think it’s a small sign of progress toward…
The indoor track of my alma mater’s gym smells like rubber and sweat. It has a specific warmth to it. The repeated impacts of dozens of feet send shockwaves through the track and almost make it feel alive. It’s been more than 10 years since I’ve…
A couple weeks ago when I spoke with Steve O’Donnell, a board member of the Charcot-Marie-Tooth Association and founder of the nonprofit Therapies for Inherited Neuropathies, I was struck by his enthusiasm and can-do spirit.
“Just keep moving.” For Steve O’Donnell, a Charcot-Marie-Tooth Association board member and founder of the nonprofit Therapies for Inherited Neuropathies, those are words to live by. He calls them his life’s slogan. The slogan helps him self-motivate to…
During this time of self-isolation due to COVID-19, I’ve often thought to myself, “At least I can still play video games and watch esports.” And I know for many others, gaming has been a nice outlet and a source of comfort and…
After about three weeks of most nonessential workers in my state self-isolating due to COVID-19, I began to see a steady stream of codes and screenshots appearing on my social media feeds. It was an influx of Animal Crossing posts. Animal Crossing, a life-simulation video game, invites players…
During tough and stressful times, it’s important to remember to hold each other close. This time, though, let’s take that figuratively and not literally. A recent conversation with a Charcot-Marie-Tooth community icon, Bernadette Scarduzio, reminded me of this lesson. It may…
Hello, I hope you are well. It’s a difficult time for many of us no matter where we live, as the COVID-19 virus has spread to most of the world by now. By the time this is published, I don’t know what the situation will look like. However,…
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