I couldn’t help but smile when I saw Bernadette Scarduzio pop up in the final moments of Episode 3…
Young Lee
Young Lee (he/him) is a writer with CMT1A living in Cary, North Carolina. He graduated from NC State University in 2013 with degrees in economics and international studies. After working for a few years in finance, Lee decided to shift his attention toward writing and library work. Although Lee first learned he had CMT at a very young age, he didn’t participate much in the CMT community until 2018 when his friend and fellow writer Kevin Schaefer encouraged him to explore and learn more about this very important aspect of his life.
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Articles by Young Lee
The 2013 documentary film “Bernadette” was a milestone for Bernadette Scarduzio in many ways. It wasn’t just the first…
A few days ago, my sister messaged me on Facebook about a documentary regarding Charcot-Marie-Tooth disease (CMT) called “Bernadette.”…
Until recently, I never had intentionally ventured to learn more about my disability. In retrospect, I was spectacularly uninterested in…
Topics such as setting goals and being more mindful have been on my mind recently. And that’s not by coincidence.
Lessons from My Grandmother
My family members are traveling from around the country this week to gather for a celebration of my grandmother’s 100th…
Among the many symptoms of Charcot-Marie-Tooth disease is a decrease in hand dexterity. This crossed my mind a few…
A friend and I surprised each other recently. I casually mentioned that I have Charcot-Marie-Tooth (CMT). And she revealed…
Leaning on Friends
I don’t particularly like hiking. Steep inclines and unpaved pathways make me nervous. And sometimes it feels like I have…
We pulled up chairs so that we could sit closer to each other. She pointed at her shoe, to a…