On My Own Two — Young Lee

Payton Rule, a doctoral student in clinical psychology at Washington University in St. Louis who also has Charcot-Marie-Tooth disease (CMT), knows that while living with a disability can be incredibly challenging, plenty of…

Managers, directors, and administrators are always discussing methods of inspiring high engagement among workers. Studies suggest that highly engaged employees are good for a company’s culture. Such employees are invested in their company’s goals,…

Many of us with Charcot-Marie-Tooth disease (CMT) have struggled to find medical professionals adept at working with patients like us. A good, productive patient-provider relationship requires effective communication, understanding, trust, and appropriate…

To help clients improve balance and proprioception, or our ability to perceive our bodies in space, many personal trainers suggest starting with basic exercises and slowly working up to more challenging ones. One…

Those of us with Charcot-Marie-Tooth disease (CMT) know that it takes things from us in profound ways. For example, it chips away at our balance and leads to muscle atrophy. Because CMT symptoms often…

I’ve often looked to my father as an example. That’s been true in many contexts, but it also includes his living well as a person with Charcot-Marie-Tooth (CMT) disease. From a young age,…

Like many, I’ve enjoyed watching incredible athletes showcase their abilities at this year’s Paris Olympics and Paralympics. The Olympic Games always remind me of all the forms athleticism can take. There are countless…

Sometimes it feels like some of us live in separate worlds with different rules and dynamics. I’ve noticed this while chatting with friends, co-workers, and even strangers about Charcot-Marie-Tooth disease (CMT), my…

A few weeks ago I saw my primary care physician for a routine physical exam, the first I’ve had in person since the height of the COVID-19 pandemic. I updated him on significant…

I don’t know if it’s possible to live with Charcot-Marie-Tooth disease (CMT) without developing a long-term relationship with physical pain. Recognizing this, the Hereditary Neuropathy Foundation (HNF) provides a guide to common…

I’m an Asian American with Charcot-Marie-Tooth disease (CMT). Of course, I’m more than this, but these two cherished identities of mine interact with each other, sometimes in profound ways. The way I experience…