I’m a pretty happy person living a very relaxed life. Nevertheless, some of my memories make me cringe, cause me grief, and prod me with regret at inopportune times. When I think about my archive of memories, many of the not-so-lovely moments are colored by Charcot-Marie-Tooth disease (CMT). Sometimes…
On My Own Two — Young Lee
Young Lee (he/him) is a writer with CMT1A living in Cary, North Carolina. He graduated from NC State University in 2013 with degrees in economics and international studies. After working for a few years in finance, Lee decided to shift his attention toward writing and library work. Although Lee first learned he had CMT at a very young age, he didn’t participate much in the CMT community until 2018 when his friend and fellow writer Kevin Schaefer encouraged him to explore and learn more about this very important aspect of his life.
Last in a series. Read part one. In her latest fantasy novel, “Katabasis,” R.F. Kuang constructs a character who serves as both an oppositional moral force for her two protagonists and as a goal that her protagonists pursue to the farthest reaches of hell. That character is…

People often say that toddlers love the word “no.” While I don’t have any children of my own, all of my experiences interacting with toddlers tell me those folks may be right. For toddlers, “no” is a simple word that can be used to express discontentment when things don’t go…
When I started cleaning my place, I thought I’d finish in one evening. I didn’t think that was an unreasonable expectation. An evening is how long it usually takes. However, after vacuuming just my bedroom that Saturday evening, a sense of exhaustion came over me. My feet ached, and when…
I don’t love having Charcot-Marie-Tooth disease (CMT). In fact, if there was a surefire way to rid my body of its symptoms, I would certainly be interested. However, my life is still filled with joy, hope, and a whole lot of fun. Sometimes I wonder if…
“But you’re not really disabled.” I’ve heard those words, or words to that effect, a few times in my life. Folks have always said this to me with good intent, seeking to give me hope and encouragement as I manage the symptoms that…
When I was in college, Facebook groups and communities with names like “I want to punch slow walkers in the head” or “Slow walkers deserve to be kicked” were pretty trendy. Several of my friends joined such groups and proudly displayed their memberships…
When a batter hits a baseball in just the right way, the impact makes a sound that’s pretty darn satisfying. It’s the distinctive “crack” that many folks think of when they think about their favorite baseball highlights. It’s the sound associated with evenings in packed stadiums, cold beer,…
If I’m going to wield a weapon and fight in a war, I want to be conscious of the intricacies of the weapon I’m supposed to wield. And I’d certainly want to know which side I’m fighting on. A character in one of my favorite movies…
I had just exited the county building after getting my second shot of the COVID-19 vaccine and was making my way across the parking lot toward my car. Then I heard a man calling out from behind me. When I turned…
I’m no Gordon Ramsay. And it’d be insulting to actual professionals if I were to call myself a chef or even a home cook. However, I do feel fairly comfortable in my kitchen. I enjoy cooking,…
A long time ago, a friend asked if there was anything I wished I could do that was outside my ability, capability, or means. The question wasn’t prompted by familiarity with my Charcot-Marie-Tooth disease (CMT) or anything of the sort. Rather, it was…
I pointed the pistol downrange, lined up the sights, and pulled the trigger. But apart from a small “click,” the pistol in my hands didn’t make a sound. The gun did not go “bang.” Many folks would be unnerved if a…
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