The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare…
Articles by Mary Chapman
The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand how the…
The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people in rare disease community…
France-based Pharnext will use a capital raise of about 7.7 million euros ($8.4 million) to support the clinical development…
To promote the value of exercise in Charcot-Marie-Tooth disease, the Hereditary Neuropathy Foundation is bringing its latest…
Beginning on Feb. 29, Rare Disease Day, chapters from notable scientific books and clinical review articles covering rare disorders will…
The Institute for Gene Therapies (IGT) has launched, with the aim of maximizing the potential of gene therapies…
An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The…
With a $100,000 match pledge to CMT1A research, longtime Charcot-Marie-Tooth Association (CMTA) supporters Seth and Missy Warfield have…
A special advisor to the Charcot-Marie-Tooth Association’s (CMTA) board of directors says he will match donations dollar-for-dollar up…