Note: This story has been updated March 6, 2025, to correct a quote from Mindy Henderson, MDA vice president of…
Articles by Mary Chapman
The Hereditary Neuropathy Foundation (HNF) will present a patient-centered Charcot-Marie-Tooth disease (CMT) summit June 7-8 that will address clinical…
From switching out Facebook frames and viewing educational videos, to attending “band” exercise classes and rounding up purchases to the…
A collaboration between Genome Medical and the Hereditary Neuropathy Foundation has led to a virtual initiative that seeks to…
Treatments for all types of Charcot-Marie-Tooth disease (CMT) will be the focus of the second annual Global CMT…
The National Organization for Rare Disorders’ (NORD) “Living Rare, Living Stronger Patient and Family Forum” is back in person…
From sporting special gear to joining a “Band Together” class — a workout session using resistance bands to improve range…
Following the Olympics, now comes the Tokyo 2020 Paralympic Games, which will spotlight thousands of competitors with various disabilities from…
At its first virtual investor event, biotech company Centogene set a bold mission: to cure 100 rare diseases…
To help patient advocacy leaders and their partners better understand how global health statistics codes — known as ICD codes…