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  • Receiving an Offer of Help Reminded Me What It Means to Be a CMTer
  • $20,000 Grant Will Help Unveil How Certain Mutations Fuel CMT
  • Pharnext Enrolls 1st Patient in PREMIER Trial Testing PXT3003 for CMT1A
  • Home Cooking Videos Showed a New Side of CMT Symptoms
  • Cost of Rare Diseases in US? Nearly $1 Trillion in 2019, EveryLife Foundation Finds
  • Interim Results of CMT&Me Study Presented in Webinar
  • CMTA Grants Researchers $1.1M to Advance Trials in CMT1X, CMT2A
  • Augustine Therapeutics Receives Funding to Research Treatments
  • Pondering My Body’s Limitations Has Brought Me Back to Dancing
  • #MDA2021 – Wearable Sensors Seen as Viable Measure of Function, Strength
  • CMT2A Study Links Genetic Variants to Disease Severity