Advocacy Partner: Muscular Dystrophy Association
About the Muscular Dystrophy Association
Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and over 300 related neuromuscular conditions. For nearly 75 years, MDA has led the way in accelerating research, advancing care, and advocating for the support of our families. MDA’s mission is to empower the people we serve to live longer, more independent lives.
Muscular Dystrophy Association supports research, care, and advocacy for Charcot-Marie-Tooth.
For support, guidance, and resources please visit: MDA Resource Center
By Phone:Â 1-833-ASK-MDA1 (1-833-275-6321)
By Email:Â [email protected]
Upcoming events
- There are no upcoming events.
About Advocacy Partners
The information above is provided by our partner. Learn more about our advocacy partners here.
Recent Posts
- MDA 2025: Wearable sensors help to assess CMT function in daily life March 26, 2025
- MDA 2025: Conference begins, marking another year of progress March 17, 2025
- FDA grants orphan drug status to EN001 stem cell therapy for CMT March 12, 2025
- What ‘living well’ means to me, given my CMT symptoms March 11, 2025
- MDA Clinical & Scientific Conference starts on March 16 March 4, 2025
- I’m challenged to experience life fully as part of my mental health February 25, 2025
- CMT Association supporting work to identify more disease-related genes February 12, 2025
- What to consider when adding a fitness professional to your team January 21, 2025
- NMD670 granted orphan drug status for CMT as clinical trial starts January 15, 2025
- 3D-printed ankle braces may help with balance, foot pain: Study December 11, 2024