Advocacy Partner: Muscular Dystrophy Association
About the Muscular Dystrophy Association
Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and over 300 related neuromuscular conditions. For nearly 75 years, MDA has led the way in accelerating research, advancing care, and advocating for the support of our families. MDA’s mission is to empower the people we serve to live longer, more independent lives.
Muscular Dystrophy Association supports research, care, and advocacy for Charcot-Marie-Tooth.
For support, guidance, and resources please visit: MDA Resource Center
By Phone:Â 1-833-ASK-MDA1 (1-833-275-6321)
By Email:Â [email protected]
Upcoming events
About Advocacy Partners
The information above is provided by our partner. Learn more about our advocacy partners here.
Recent Posts
- Gene therapy Engensis shows early signs of benefit in CMT1A patients March 12, 2026
- Unpacking my beliefs on physical strength, part 2 March 10, 2026
- Unpacking my beliefs about physical strength, part 1 February 24, 2026
- NMD Pharma’s oral drug ignaseclant improves muscle strength in CMT study February 17, 2026
- Healthy eating can be challenging for adults with CMT, new study finds February 12, 2026
- Considering the impact of AI on the disability community February 10, 2026
- CMT patient advocate to be honored by MDA for helping advance research January 15, 2026
- Rare mutation drives woman’s unusual CMT symptoms: Report December 11, 2025
- Ankle, foot surgery allows adults with CMT to achieve personal goals November 13, 2025
- Existing in the tension between thoughts and actions, part 2 November 11, 2025
